u/Top_Badger883

When I measure it while resting in bed, it’s normal. When sitting, it’s elevated—140/95. After exertion, it’s higher than 160.

I had a thalamic brain hemorrhage on May 19. At first I was paralyzed, and by mid‑June, during inpatient rehabilitation, I was slowly able to walk again on my own. During that time, my wife visited me almost every day—a 300 km round trip—just to spend a few hours with me.

After my discharge in July, I’m now at home and need support with everyday tasks such as cooking and laundry, as well as accompaniment to therapy appointments several times a week.

I’m so sorry that I’ve put my family in this situation. We’ve been together for 15 years, and she knows me as the strong, cheerful person I used to be.

Now I often spend a lot of time in bed, and everyday activities like grocery shopping have become unusually exhausting. Cognitively I’m fully present, but my impairments cause significant symptoms, including burning pain on the skin and fatigue. On good days I feel quite fit, and we go out to a restaurant or the cinema, or take a walk in town.

By nature, I’m someone who wants my loved ones to be well—and only then myself.

Thanks for reading; I just needed to get this off my chest.

I’d love to hear about your recovery process and your experiences with this. I’m currently in my 4th month after my hemorrhage.

I’ve heard that this is probably the worst region for recovery…

My goal after I was in the hospital and paralyzed was to be able to go to the toilet by myself. Fortunately, I achieved that after a month.

How long until it gets better?

I had a brain hemorrhage three months ago. In the hospital, I was relaxed and even happy, but I was paralyzed on my left side.

Now, three months later, after rehab and lots of exercises, I can walk again. But everything still feels heavy and tiring, especially without any real joy or fun.

My remaining problems are mild double vision, loss of sensation on my left side, and pain.

Does this usually improve over time? I would really appreciate hearing about the experiences of people who are further along in their recovery.

Thank you.

Has anyone lost their sense of touch and trained it back? I can hardly find anything about improving touch sensation

Hello everyone,

I would like to hear about your experiences with dealing with a stroke at a young age. I had a brain hemorrhage at the age of 32 in May. I was relatively fit and healthy before it happened. My recovery is currently progressing well—about 45%.

I would really appreciate hearing from others who experienced something similar.