We’re building an app for people with Parkinson’s that treats you and your family member like a person, not a data point — and we need your help.
Hi everyone, I'm a UX researcher working on an open-source symptom logging app for people living with Parkinson’s. Our project is registered under DemocracyLab: https://www.democracylab.org/projects/1839 . We’re building this before anything is designed, which means your real experience shapes everything.
Most Parkinson’s apps are clinical and complicated. We’re building something different — a simple tool that fits around your life, not the other way around. No judgment, no pressure, no medical jargon on your screen. But we won’t get that right without hearing from you first.
Who we’re looking for:
- People diagnosed and living with early-onset Parkinson’s who manage symptoms and medication .
- Caregivers supporting someone with early-onset Parkinson's. We'd love to understand how you help manage symptoms day to day.
What’s involved:
A relaxed 60-minute conversation over Zoom or phone. No tech experience needed. We’ll ask about your daily experience. There’s nothing to prepare and no right or wrong answers.
Why it matters:
This is a free, open-source tool built for the community. What you share will directly shape what gets built.
Your privacy:
Everything you share is anonymous. Your name will never be connected to anything you tell us.
Please message me if you are interested in contributing to this project. Your voice can truly make an impact! Thanks for reading this post.