u/UnknownBeginning4336

I was diagnosed with lupus and sjogrens last year, this year I was diagnosed with endometriosis and pelivc floor dysfunction. When I was first diagnosed with lupus and sjogrens my relatives and partner were supportive and sympathetic. I would be open and honest about what I'm feeling and going through whenever asked 'how are you feeling?' 'Are you feeling okay?' Then the flares and symptoms started happening more frequently and that sympathy and support turned into ableism.

Now my partner makes comments about things not getting done around the house, asks for sex even after telling them I'm in pain, exhausted, etc. and when I am able to do housework they are patronizing/condescending. My mother in law, who helps me take care of my high support needs autistic child, is now questioning my ability to be a mother. Saying things like 'with all your problems, are you sure you can handle this?' But when I try to leave her alone with my child and get the rest my body needs, she's calling me to help/save the day. My own mom is sympathetic but extremely busy, so all she can really do is say 'I'm sorry, I wish I could take this suffering away from you.'

So, I've just opted to not really talking about my symptoms anymore. Usually just saying things like "I'm fine," or "I'm just really tired," when asked if I'm okay and try to power through things. I feel unheard when I tell them about it, so why even bother telling them what I'm going through. I do still tell my partner when I'm in pain but they still don't really acknowledge it or does/says things that imply that I'm being lazy.

Whether I tell them or not, my mental health still takes a hit and it feels never ending. So, what does it really matter, right?

I was diagnosed with lupus and sjogrens syndrome last year. Since then it's been a roller coaster of flare ups, finding doctors I trust, etc. In February I had an episode of extreme abdominal pain and vomiting and was hospitalized. During my hospitalization they decided to take out my appendix. While they were taking out my appendix they also found endometriosis.

After getting out of the hospital, I found an endometriosis specialist and they suggested surgery to remove the endometriosis spots they found. I made the doctor aware I have no intention of having children (I'm almost 35 and have never really wanted to give birth) and asked if a hysterectomy was possible. They agreed and we set up the appointments I needed before the surgery.

After my appendix was removed I had a hematoma in my lower abdomen. Four months later and it is still there (about the size of a pea now). My surgeon said that it is still there due to my body not being able to heal as quickly because of my lupus and sjogrens, but expect it to go away if I use a heating pad on it.

After my experience with getting my appendix removed, I am worried about the recovery process after a hysterectomy.

Has anyone else gotten a hysterectomy after being diagnosed? Or just a hysterectomy in general? What was that process like? I was told to expect 8 weeks of recovery, but should I expect it to be even longer because of my autoimmune diseases?

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