Cold urticaria, Hypo, and hEDS
Since I've been around 10 I started getting random allergic reactions that would only be controlled by benedryl. It would knock me out as a kid for a few hours then happen again. After numerous stabby allergy panels on my back most were negative alise from regular things such as dander or pollen. Thyroid tests and other blood tests came back normal. The allergist was puzzled so he decided to place an ice cube on my arm then bam hives spreading, swelling, itchy reaction. It made sense since my throat almost closed up from swimming for 10ish minutes. Originally we assumed face paint, sunny d, etc, etc. Caused a lot of issues with teachers in school or the nurses believing me because my hives were internal more than visible aggressive hive welts now.
Anyways... They did an antihistamine treatment of some sort where I would rotate taking different medications and also get a shot at a doc office every so frequently. Allergy goes away for two years. Comes back just slightly less severe. Great! I started the drug trial for xyzal and the results are amazing for me (no drowsiness and long lasting). After it was released to stores over the counter, I continued to take It every other day to avoid an unavoidable reaction for 18 years.
My health has never been "normal". I've always been covered in bruises excessively from head to toe. Was tested for blood clotting due to how long scratches would take to heal and stop bleeding. Cold intolerance, weak immune system, extreme fatigue, weight gain
Fast forward to the last two years of an insane amount of blood testing my doctors are still extremely stumped as to what the hell is going on. My thyroid is swollen, I have fluid behind my ears they can't explain, constant pain. The ultrasound showed no abnormal growths or nodules. TSH finally after multiple tests showed hypo. After begging my doctor after the 4th irregular test that it wasn't a fluke she put me onto a name brand thyroid medication since some fillers cause inflammation.
I have no understanding or explanation but my rare ass cold allergy I've had for 18 YEARS decided to almost entirely go away 3 weeks into taking the medicine. After the initial 10 weeks the bruises disappeared, more energy, and metabolism got faster. All the classic hypo issues. My allergy still has flares but only my palms now. This also leaves me stumped because despite cryo coagulation, hashimoto's , autoimmune, or lupus blood tests all come back as normal or negative. So many women in my family have hypo, thyroid cancer, hashi, or lupus. Due to the hEDS I'm in constant pain but that isn't really my concern.
I wanted to post here so I made an account to see if anyone has gone through something similar. I feel like I'm going crazy lol. I even had a second opinion with a Harvard doc who told me my unexplainable bruising and pain was because I needed therapy??? Oh my bad I didn't realize depression caused sciatica, allergies, or joint dislocation of my hip 4 times this week sleeping pfft...