Messages of hope/encouragement?
Hi everyone,
I have a CSF leak from an epidural I received when my son was born 18 months ago. It took 17 months to get a proper diagnosis after being dismissed over and over. I told the midwives where I delivered that I was having severe positional headaches shortly after birth. They checked my blood pressure, said I was fine, and sent me on my way. My husband figured out I had a leak using AI, which picked up signs of SIH before my neurologist did.
I had my first blood patch a few weeks ago, and it worked for 10 days. Then it failed, and all of my symptoms came back. I have my second patch scheduled soon, and if that doesn’t work, my doctors think I may need surgery.
I’m really needing some encouragement right now. I have a toddler to parent, a life I want to get back to, and I’m struggling. If you’ve been through this and come out the other side, I would love to hear your story. Success stories or words of hope would mean so much to me. Maybe this thread can also help someone else who needs a little encouragement too.
Thank you!