HM Weakness in Both Arms and Legs?
Hi everyone! I’m not asking whether I have HM**,** and I’m currently being worked up by my neurologist. I’m just curious if anyone with diagnosed hemiplegic migraine has had a similar progression.
I have complex migraine (currently treated with Emgality, which helped a lot initially) and POTS. While I was working remotely my episodes were fairly well controlled, but after returning to in-person retail they’ve become much more frequent despite treatment.
During episodes I can have bilateral arm and leg weakness (sometimes I can’t walk), blurry vision, loss of coordination, and speech issues. Sometimes I physically feel too weak to speak, and other times I can’t retrieve words even though I know what I want to say (for example, I once called a praying mantis a “sexy grasshopper” because I couldn’t access the right word). The symptoms develop gradually over several minutes and resolve completely afterward.
For those with diagnosed HM, has anyone experienced a similar progression or combination of symptoms? Did your treatment plan change when your episodes became more frequent? I’m mainly looking to hear others’ experiences so I can have a more informed discussion with my neurologist