u/Voices4Vaccines

Children Paid the Price: Growing Up in a Faith Healing Community
▲ 126 r/skeptic

Children Paid the Price: Growing Up in a Faith Healing Community

article text:

A two-year-old in my church died of pneumonia. The only treatment: being prayed over. Nobody called a doctor. Nobody took them to the hospital. It simply never occurred to anyone to do that.

That’s the world I grew up in.

I was raised in a high-control religious community that practiced faith healing. We were taught to put our trust in God to heal our diseases. As a child, I had never been to a hospital. My community believed that God heals, not man. Vaccines were a sin. All seven of my siblings and I were born at home, with the help of one older woman who had no real medical training. None of us had ever been vaccinated.

I suffered multiple vaccine-preventable diseases as a child. When I was three years old, I got whooping cough. I had coughing fits so severe I would fall to the ground, gasping for air. The only treatment I received: prayer by a church elder. The pastor poured a small amount of oil on my head, laid his hands on me, and asked God to reveal anything in my life that might be preventing healing. The prayer was simple, and rarely long. My community believed that God uses illness to show you ways in your life that you were meant to be closer to Him.

When I was nine, chicken pox spread through the small church school I attended. None of the children were vaccinated. Kids came to school clearly showing signs of chicken pox, and everyone treated the outbreak as something that just happens sometimes. It was a small school, but I remember everyone being out sick. I was the first in my family to get it, but my siblings soon followed—including my six-month-old sister. I remember her rubbing her arms and crying in constant pain. Nothing was done for her. Many of my siblings and I still have chicken pox scars.

As a child, I never thought any of this was strange. It was just life. Everybody I knew believed the same things. We weren’t allowed to talk to people “outside” our community, so I had no frame of reference. If somebody had told me they were vaccinated, I probably would have told them that was a sin. We knew our way of life wasn’t quite normal. We were told not to tell people that we weren’t vaccinated, and warned that the government could take us away from our families.

Many of the people in my church died. Looking back, I realize now that they probably died from preventable or treatable illnesses. I can’t know for sure, because we weren’t supposed to evaluate conditions, name sicknesses, or try to understand them. If someone fell ill, we would just say they were “tempted in body.” The church preached loudly against medical treatment, medicines, and vaccines. It wasn’t that people refused to go to the hospital. There wasn’t even a refusal, simply an acceptance that a hospital was not a consideration. It’s hard to explain, but when we were sick, going to the hospital wasn’t even thought of as an option. Only now do I understand how ignorant and uneducated the church’s arguments were.

When I was fourteen, my mother got very sick. I watched her die slowly while my siblings and I could do nothing but sit with her. It was a slow and agonizing process, but she never once thought of getting medical help. Her death certificate lists the cause as stage four breast lymphoma.

There was no diagnosis while she was alive.

Just prayer.

I credit the internet for my break from the church. As a young teenager, I started reading about women’s rights. What I learned made me question the church. One question led to another. Before I knew it, I had unintentionally deconstructed my entire belief system. Once I realized the church was wrong about some things, I began to see it was wrong about everything.

Leaving the church wasn’t simple. It still isn’t. I have young siblings; my father will prevent me from seeing them if I speak openly against the church. People who leave are shunned—talked about as if they were dead, judged for every decision they make afterward. If you seek medical help, people in the church often say you wouldn’t have needed any help if you’d stayed in the church. I haven’t told many people about my decision to leave. I have to protect my relationship with my siblings.

But I am quietly getting caught up on my vaccinations. Because I never had any vaccines as a child, I’m working with a doctor now to get on a schedule. I’m still young, but I’m making up for lost time.

I don’t have magic words to convince anyone to vaccinate. What I have is my life.

I had whooping cough at three. Chicken pox at nine, and watched my infant sister suffer through that disease with nothing but prayer to help her. I watched a two-year-old in my church die of untreated, preventable pneumonia. I watched my mother die slowly of treatable cancer. I grew up in a world where children were sick, and scarred, and sometimes died—and nobody called it preventable, because nobody knew any different.

It is disheartening to see people I know influenced by fear mongering. It is disheartening to see them so opposed to basic education. It is disheartening to see medical treatment discouraged.

Children cannot make these decisions for themselves. They cannot question what they’ve been taught. They cannot walk into a doctor’s office. They are entirely dependent on the adults around them—and when those adults believe that medicine is a sin, the children pay the price.

I was lucky. Not all children are.

I hope my words show you how important vaccination is. Without vaccines, children suffer.

So please, vaccinate to save your children and the children around them.

voicesforvaccines.org
u/Voices4Vaccines — 3 days ago
▲ 269 r/Vaccine

The Long Shadow of a Measles Infection

My grandparents were told that my father had permanent brain damage and would never fully recover. When my father awoke, he had to be retrained from potty-training on up. They assumed this meant that his cognitive function would never be normal, but it was actually his personality that changed.

My father had come down with measles in 1962 at 13 years old, while living in Johannesburg, South Africa. His case developed into encephalitis, and he slipped into a coma. He woke up some two or three weeks later.

By my father’s own description, he could not control his actions when he lost his temper. He had no recollection of having anger issues prior to getting measles.

My father had been incredibly proud of a collection of special rocks he had collected while in South Africa. Shortly after awakening from his coma, he was holding his collection when something triggered him. He forcibly threw the rocks, scattering and breaking many of them in the process. When his anger subsided, he was left looking at his destroyed treasures and genuinely confused about why he had ruined something that was so special to him.

This sort of uncontrolled outburst would plague him the rest of his life, even though he was a very gentle man at all other times

The only diagnosis he ever got was of long-term brain damage. I don’t think the doctors or his parents realized that the violent outbursts were a result of this. Even though he regained his full cognitive abilities, his parents treated him as if he would never have the same intelligence level as other people his age. For instance, they gave him building blocks as a gift when he turned 16 years old.

Due to my father’s brain damage, I grew up never knowing when he would blow up, and what might happen. At least twice, he lost his temper while driving and did u-turns while driving 40 mph. In high school, I had to stop him from bashing his own head into the wall of our apartment. Once I had a partner, my father regularly shattered Christmas decorations if we did not get to my parents’ house at the right time on the holiday.

Eventually, he got to a point where he could somewhat direct his actions, like throwing his car keys into the bushes so that he could not drive off mad. He would stalk off instead and usually be gone for several hours before coming home once the anger passed.

It has taken years of therapy and psychiatric treatment for me to come to terms with the fact that these and other episodes were not the result of deliberate decisions on my father’s part. It was not until I was in therapy that I stumbled across psychological texts that listed the symptoms of prefrontal cortex and orbitofrontal cortex damage. They fit perfectly with the changes in behavior that my father described after his coma.

Finding those articles finally let me let go of some of my anger. However, it does not make it any easier to deal with the results.

If there had been a vaccine available when he was a child, I feel certain he would not have gotten the disease. If he hadn’t, my entire childhood would have been different.

voicesforvaccines.org
u/Voices4Vaccines — 7 days ago
▲ 2 r/flu

Flu Experiences

Hi there. This is Noah with Voices for Vaccines. We are a nonprofit that (among other things) shares personal stories about the diseases that vaccines protect against.

I'm looking for people to share about a serious experience they had with the flu, either in writing or via a short interview. There are a number of examples here: https://www.voicesforvaccines.org/category/influenza/

If you might have a story to share, feel free to comment or DM us! We try to make it easy to share.

>

u/Voices4Vaccines — 10 days ago

What Measles Did to My Family

Original Post

---

My sister Dreama, who was 13, could only say a few words. Since I grew up with it, I didn’t know how unusual this was. She could walk then, but soon someone always had to be able to carry Dreama, or “sissy” as we called her, through the house or to the car.

In 1972, six years before I was born, my sister got measles. My mom always told me that this is why she was sick, but I was probably 8 years old when she finally explained the whole thing to me.

Dreama was smart as a whip. Her principal would later say that she was astounded by her intelligence and that she was a popular, promising girl. But after she got measles, she began to fall behind in school and lose coordination. That was the end of a normal seven-year-old child.

Over the next 14 years, she would slowly lose all functions. She was diagnosed with SSPE, known then as Dawson’s Encephalitis, a rare but almost always fatal complication of measles which affects your brain.

This meant my childhood was not normal, either. Growing up we had a hospital bed in our living room, with physical therapists, home health aides, and others coming and going.

My mom started taking her to see a doctor in Detroit, the only one she could find who was remotely familiar with SSPE. She was given a stapled packet listing everyone who had this disease at that time, which had about 200 names. Mom became friends with two of the other parents whose children had this disease. We visited them when we could.

Mom always said she would take care of Dreama as best she could, as long as she could. Some other parents sent their children away to facilities. She was supposed to tour a home called Apple Creek but heard about a case of patient neglect, and said she could never send her daughter to a place like that. 

When mom finally explained Dreama’s illness to me, I asked her why she didn’t sue the school, since that had been where Dreama was exposed to measles. She asked, “Would that make her better?” Our concern was for her.

Someone always had to be home with her. At the age of nine, I could set up her tube feeds and change her oxygen. I stayed up on weekends to help suction her throat when she coughed. My parents never asked me to do any of it, but I saw their struggles so I would help when I could.

We couldn’t have had a better family around us through it all. Originally from West Virginia, my mother had nine siblings who would visit us in Cleveland when they could. My uncle Gary planned to move his family to Florida, but told my mom he would delay the move as long as she continued to care for Dreama. So his family stayed there for four years after they’d made up their minds. In that way, Dreama’s life affected my aunt, uncle, and their children’s lives too.

Dreama passed away in 1988. Not a day goes by when I don’t think I don’t think of her. I often wonder what she would be doing if she’d never gotten sick, and believe she would be accomplishing great things today.

Seeing measles come back shook me hard. It has me anxious and furious and a complete mess. It’s completely senseless, and I wish people who say measles is nothing could have a look at my life.

I watched my sister die a slow death. If you could prevent the chance of this happening to your child, why would you even question that?

Dreama Sue Hager

1964-1988

---
Written by Anita Mantz, a former factory worker who lives in Ohio with her husband, daughter, and dog.

u/Voices4Vaccines — 13 days ago