Looking for direction
Hello, found this group looking for help on the internet, lost and confused so here goes.
in early 2025 my father was diagnosed though his yearly blood work at the local VA to have abnormalities. upon further Blood only testing the he was found to have hairy cell leukemia. now, this doctor was the head of the department and the region so they're the big deal. the family was told this was a wait and see cancer. when your spleen gets a little tinder you come in get some easy chemo, in/out done remission come back in ten years its the best stuff you could have hoped to get. dad being dad a marine and a fire fighter for 27 years ya trusted the doctors. so 9-1/2 month later spleen hurts he calls appt is a month out. week later he falls due to anemia, she orders him in emergency get the chemo done now. no test, just chemo.
it was a week of hospitalized chemo treatments 2 hours each 5 treatments. they send him home cause he looks good, 3 days later he has a fever over normal, whole body rash, every side effect on the damn list for the chemo, but it can happen, so to the er we go. they freak out, get the "apparently towns best oncologist" and were talking to him and we tell him what's going on and he calms every 1 down till he ask us if he can get the bone marrow biopsy confirmation for the cancer since he had the chemo, and were all just staring at him bewildered like what?
so leaving more story out after getting a bone marrow biopsy, he dose not have nor ever had "in the results written as such" hairy cell leukemia he instead has multiple myeloma.
the chemo he as just gotten has fried everything he needed to fight off the cancer he has and not only that but, the treatment needed to be started immediately after being found.
when we found this out we gave my father the choice to fight, as they gave him 2 weeks to live, he said yes. we visited him and took his dog up to see him too occasionally for 3 months as he got transfusions every 3 days to survive while they gave him the right keno when he was strong enough till he knew it was the end and he wanted to be at home where he died.
the VA has refused to take any responsibility. at this point my mother may not even get that. we've jumped through Vos's vof's talked to layers no one wants to touch us with a ten foot pole.
at the end my fathers only wish was for my mother to be taken care of and thats what im trying to do, but if i can help another person not go through the same thing my father did that would be enough for me.
any suggestions on what to do from here.
we live in Palm Bay Fl My father Is A MARINE and a retired firefighter