Bilateral Rupture - systemic disease work up?
Hello all - happy to find a community, (although sad for us it exists).
Sunday: Suffered bilateral complete ruptures landing a controlled "box jump" on a springy gym floor. (For context - Did a half ironman 2 weeks ago, Was 5 weeks out from my 4th full - feeling in the best shape I've been in - in a long time and pop/pop....)
Went to the ER immediately. Officially a disposition nightmare (live alone, home is not accessible) - was admitted to the ortho service as an add-on case, they operated Tuesday (so injury to surgeey < 48 hours) and I was discharged home that evening with a wheelchair, knee scooter, walker, and two braces- completely non weight bearing. I have accessible and comprehensive medical coverage due to the nature of the work I do and the place I do it.
MRI done before the OR hadn't been read yet formally but came back after I got home (the surgeon looked at it, but there was also a talar dome injury, joint effusion and complete tear of the ATFL on the right). None of which made sense with the mechanism of injury to me.
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I requested a rheumatology referral. Interestingly I was seen by rheum about a year ago- [in my 30s, multi-focal joint pain often out of proportion with activity / often unrelated to any use (like my thumbs or wrists will randomly hurt, feet, knees, ankles, hips). Have had nagging injuries ever since a major index injury in 2020 (torn labrum - which led to significant deconditioning) and then have never been able to stay healthy more than 4-5 months since.
- chronic fatigue/ idiopathic hypersomnia with brain fog. ]
At that evaluation (a year ago) I circled too many items on the check list, my ANA and RF were negative and they said I had fibromyalgia and anxiety and discharged me....
Curious about the likelihood of a systemic illness given the randomness/ somewhat atraumatic nature of this injury and the preceeding injuries. EDS or maybe marfans? Anyone been diagnosed with a connective tissue or autoimmune disease with this as the catalyst for evaluation? (I am long/lean but not awkward Michal Phelps big, I am hypermobile but only hit a 4 on the Brighton.) I was willing to just blame myself for being tired and lazy, and maybe a hypochondriac with all the other symptoms the last 4-5 years, but I definitely didnt exaggerate this injury, and maybe it hasnt all been in my head...
Anyone have similar experience and any breakthrough moments with their medical team?