u/WhereasTechnical343

▲ 4 r/HemiplegicMigraines+1 crossposts

Anyone with hemiplegic migraines experience neurological symptoms after orgasm?

I’m curious if anyone else with hemiplegic migraine has experienced something similar.
I started getting hemiplegic migraines frequently when I was in 4th grade. As I’ve gotten older, they’ve become MUCH less frequent…now I might have one once a year or even only every few years.
I do have a lot of health anxiety surrounding my migraines and sometimes worry about how HM could affect me long-term. I’ve noticed some pretty consistent triggers over the years, including intense/rigorous exercise, strong smells, and periods of significant stress.
Recently, I’ve noticed something strange around/after orgasm. I don’t get a headache, but my hearing suddenly becomes very muffled, almost like I’m underwater, and I get tingling in one hand. It’s temporary and goes away.
I’ve also experienced explosive headaches after orgasm in the past, but those were separate episodes i believe.
My biggest concern is whether orgasm/sexual activity could somehow trigger a stroke or another serious neurological event because of my hemiplegic migraines. I know migraine aura can happen without a headache, but I’m having trouble finding people with HM who experience these particular symptoms after orgasm.
Has anyone with HM experienced:
Muffled/hearing changes after orgasm?
Tingling or numbness in one hand after orgasm?
Migraine aura without the headache triggered by sex/orgasm?
Explosive headaches after orgasm?
Did you ever get an explanation or have testing done? I’m planning to talk to my neurologist, but hearing from people who have experienced something similar would really help my anxiety.

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u/WhereasTechnical343 — 9 hours ago