u/WordSignificant3620

▲ 55 r/ALS

What are the last days like

I was diagnosed with Als 3 years ago And I spend my time now mostly in bed

My breathing is becoming difficult To the point where I'm starting to Think about the end

This is address to People who have Look after loved one All professional carers

I am just curious As to how The last few days are

I am guessing It's mostly A diminished ability to breathe

I am told People are then Add Ministered morphine

To make the breathing easier They eventually fall asleep And do not wake up Is that correct

Please forgive the Typing errors As I'm using Voice activation

Thank you very much

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u/WordSignificant3620 — 4 days ago
▲ 11 r/ALS

I have the opportunity to purchase An electric rear seat Which swivels and then Lowest to the ground And then transforms Into a manual wheelchair

This is not a very cheap item But given it second hand It is affordable for me

Given that all my limbs of paralyzed It would be much easier For my Partner To transfer me To the vehicle End from the vehicle back to my Bed

Before I spend the money I am just wondering how much use I will have out of it And if it's worth spending that kind of money

At the moment I can no longer travel Because no one can actually live me in my chair As being an SUV It is quite High

I'm just wondering what you people out there Are Using And if you still traveling

I am in my third year And my neurologist Has predicted that I will be gone by the end of the year

From my limbs at the moment I'm still okay My breathing is okay At 60% I can speak I can eat I can drink But I also know that With this illness you can decline quite quickly Hence why I'm asking you What is thoughts are The cost is approximately 5,000 What do you think

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u/WordSignificant3620 — 18 days ago
▲ 6 r/ALS

I am in my third year with This illness I am now pretty much a quadriplegic And cannot assist my family for Transfer Having said that When I do get transfer to my Desk To Browse the Nets On my laptop I get really tired after 1 hour And ask to be transferred back to my bed At the moment my partner and her sister Transfer Me by hand Betits become increasingly difficult And my partner Has a Soul back Constantly I was thinking of Investing into a hoist Such as a H o y e r Hoist These cost quite a lot of money And I'm not sure how much use I would get out of it I'm asking for your advice And thoughts About this investment

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u/WordSignificant3620 — 20 days ago