u/YonatheRedXra

New or worsening symptoms, need some insight

New or worsening symptoms, need some insight

I need some insight on what I should be looking out for or if something has drastically changed.

Background: I have Scheuermann's kyphosis and had surgery in 2002 to fix T9 to L2. This included rods, pins, and bone fusions. In late 2021 I had pancreatitis and shortly following that, I started having back pain (probably unrelated, but so many things started going off the rails since). For the last few years, I couldn't identify if it was lumbar or SI Joint pain. All my doctors kept telling me it was just the SI Joint pain.

Early this year, I relocated due to a promotion. Better doctors and better care have been able to identify that i have both lumbar and SI. With their help i have been able to tell the difference between the 2. Something changed this year, and I don't know what I did, but the lumbar pain has gotten significantly worse. Walking long distances is difficult, standing for more than 15 minutes while cooking is painful, and my fatigue has significantly increased. I cannot get to PT till end of August and can't get a pain management consultation till end of September. I also deal with fatigue on a daily basis as the back pain is causing me to wake up after only 5 or so hours.

Today, I am experiencing something that sounds like it may be restless legs, but I am not sure. The backs of my legs feel irritated when I am sitting or laying down where something is touching the backs of my legs (recliner and laying on my back in bed). This only started this week.

Due to a very long history of chronic pain, my pain tolerance is high. I don't know if this is a new symptom unrelated or if I should be concerned. My Neurosurgeon said if I experienced burning, spikes of pain, or numbness in my legs I should go to the ER.

I am also aware that some of my pain is due to my weight, I probably carry 40lbs or more on my stomach (I am trying to lose weight, but it is a long journey).

What are your thoughts?

u/YonatheRedXra — 1 day ago