Got to meet a specialist but I feel like I blew it due to being nervous
Hi! Im currently seeking hEDS diagnosis. I finally got to meet a specialist and essentially the result was "almost yes but technically no", I missed a point because ive only had one hernia and not multiple. I know I was nervous at the appointment and I have pretty bad memory issues so I remembered a bunch of stuff that I could've mentioned later, some of them being:
a hole in my heart as a kid (it grew together on its own),
stretch marks appearing on the backs of my knees, thighs and groin area before puberty and growth spurt,
the fact that ive had braces bc of dental crowding,
clicking jaw that also gets stuck,
I pee super often and have difficulty holding it (I only talked about nr2...)
Recently got officially diagnosed with POTS (that same morning actually)
I still have my genetic testing results coming in August, what should I do? She gave me her contacts if I have any questions, should I email my doc with the info I forgot before or ask for any kind of second opinion or should I just want for the gene test results first?
Its so hard to let go of this im driving myself insane with this :C
To also add, my mom and grandma have had all of the same issues and symptoms that im currently dealing with.
Any advice is welcome ❤️
Edit: currently with HSD diagnosis