u/aecmarquardt

▲ 9 r/sepsis

supplement recommendations

hi! i was reading some posts on here and saw that the general consensus for hair loss is that it typically happens 2-3 months post-recovery. i got out of the hospital a little over three months ago and i'm starting to notice some significant shedding. i have long, thick hair and i will be devastated if i lose it. i'm not seeing any density loss yet, but at the rate my hair is coming out, it may be soon. i really want to stop this before it gets too bad. does anyone have supplement or hair care routine recommendations? i bought some biotin but didn't start taking it yet. i also have thick, curly/wavy hair and i tbh don't want to have to take hair loss stuff yet because i don't want my hair to get any thicker - it's too hard to take care of! but i'd rather have too much hair then not enough though lol. thanks in advance!

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u/aecmarquardt — 6 days ago

ada accommodation questions

hi! first time going to furnace fest and i'm super excited! i just had some accessibility questions! i posted on the ff facebook group before for something related and got some vague answers, but i feel weird making another post on there and being annoying lol. long story short, i spent some time in the hospital a few months ago with sepsis. i've been doing much better since being discharged, but now i have post-sepsis syndrome, which is kicking my ass. its been about three months out of the hospital, and although i've made really great physical progress, i'm nowhere near as active as i should be. i've been looking forward to ff and i know there is a lot of walking and standing involved with festivals and i'm not sure how much physical activity i can handle. with that being said, i'm considering ada accommodations. the facebook group said that in past years, it was first come, first served and that they gave out wristbands but that this year may be different. do i also need a doctor's note or something to get the ada accommodations because i don't outwardly "look" disabled? are there any places to sit/rest with a ga ticket? i also heard you can bring chairs to sit but i'm flying from pennsylvania so are there chair rentals? i've never had to do this before so any and all advice would be great! i'm really hoping i feel better and am able to enjoy the festival like i normally would, but i want to make sure that i have all the information i need just in case! thanks!

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u/aecmarquardt — 13 days ago
▲ 6 r/sepsis

hi! so this is a long story, but i'm looking for some support/what to expect on my healing journey. what happened was i was admitted to the hospital three weeks ago for a surgery that i've had three times before: a kidney stone removal and a temporary implant in my ureter. i stayed for five days, which i hadn't expected, as i thought the er would discharge me and set up outpatient surgery, but my uncontrolled pain saw that i was admitted. i went in on a thursday and left on a tuesday.

from the time i woke up from the procedure, i felt an excruciating pain i've never experienced before. the hospital doctor accused me of drug seeking and only gave me an antibiotic to cover her ass after a mild infection was found. i was discharged and for the next week, i could barely walk from severe pain and my calls to the urology office consisted of providers telling me that excessive bleeding and pain was 'normal' and 'not to call back unless i have quarter sized blood clots.'

a week after my discharge, i headed back to the er because the pain was so bad i was crying. the lovely staff at the er gave me appropriate pain management and tested me for infection. i had two bacterias inside me causing a nasty infection, but i wouldn't know until the test came back on thursday. i left the er feeling great, but that night i didn't feel right and i woke up with a fever on wednesday morning. i called urology immediately and they told me it couldn't be from my surgery and to go to an urgent care. i travelled to urgent care and the provider told me at the check in window to leave because there was nothing that they could do that the hospital hadn't already done. by that night my fever was 103 and not improving from tylenol or motrin. i called my pcp and they advised that i continue taking tylenol, and at the point i was so defeated that i didn't seek any further medical help.

by the time friday morning came, i was vomiting uncontrollably and my aunt took me back to the er. my temp was 104 at triage. i waited for an hour and a half in the waiting room but was awaited by the pa, nurse, and phlebotomist as soon as i got to my bed. the diagnosis was sepsis. so here i was being admitted again for the second time in two weeks. i'm currently still in the hospital now, as i am finally responding to treatment after almost 6 days of high fevers untouched by around the clock tylenol, iv antibiotics, and oxycodone. i'm feeling great today but this journey has been hell. i had a nurse for three days that was neglectful - holding my tylenol for two hours past my dose time and spiking my fever back to 103, refusing to change the dressing on my iv while it was hanging out of my arm, and giving false information to the night nurse during shift change.

i'm itching to go home, but the doctor told me today that i'm not improving as much as i should be. hopefully today changed that. with all that being said, what am i to expect once i leave the hospital? i bad plans with friends: a concert, going out to our favorite restaurants and bars, poetry groups, art shows. am i safe to be around people? i know the risk of reinfection is high so what precautions do i need to take while i'm healing? i do have a good support system, a low demanding job, and mental/physical health resources, but i still am worried and don't know what to expect. thank you so much for reading!

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u/aecmarquardt — 4 months ago