u/ahtramserolf

Can Sjogrens put you more at risk for myopathy??

I don’t even have dry eyes or mouth.

What I do and always had was stiff joints. Even as a child my back would get stiff. I’m reading about Sjögren’s affecting more than just the salivary glands and I wonder if that could cause bilateral myopathy due to myositis attacking my nerves and muscles.

Early January I gave birth to my first child. Everything seemed fine at first until feeling to my legs did not come back. After two days in the hospital I began to have severe nerve pain on both my feet. Two mri later they tell me I have myositis inflammation on both of my legs and caused me severe nerve damage. All the doctors kept asking if I had gotten a vaccine recently or if I had lupus. My bloodwork only showed Sjögren’s syndrome and when I finally got to see a rheumatologist and a neurologist they told me that Sjögren’s is only a salivary gland issue. My neurologist was annoyed with me because I didn’t have an answer to what cause the myositis inflammation to my legs. If my rheumatologist is telling me that it’s not caused by Sjögren’s but I don’t have polymyositis or lupus and when I tell the neurologist that my test results only showed Sjögren’s and he also shrugged it off as just a salivary gland issue.

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u/ahtramserolf — 2 days ago