u/alcoholic_bugg420

Does anyone else get HM symptoms every day?

I had my first hm attack(as far as I know anyways) about 2 years ago now. It's only gotten worse since then.

I recently found out that I have craniocervical instability and a borderline chiari I malformation, which definitely explains a lot of my daily symptoms and chronic migraines.

I just wanted to know if anyone else experiences HM like I do though, because it seems most people only get attacks/symptoms every few months on average. I get symptoms every. single. day. I also have POTS, which goes horribly in hand with HM.

It's excruciating and exhausting. My body never has enough time to recover and I feel so mentally and physically exhausted all the time. Most of my migraines don't come with pain, but It's been happening more often.

I have really bad medical anxiety, especially since my first attack because I was home alone and scared that I had a stroke. So I just want to know if anyone else experiences this.

I know I'm dragging this on, I just woke up to a migraine ugh lol

Anyway, if anyone's curious, or just for more information(bc I know symptoms vary for everyone), here are the symptoms I experience on and off every single day for at least the past year:

- Exhaustion/fatigue

- On and off head pain/pressure

- Slight numbness/nerve issues in typically left side of body, specifically fingers, face, and foot, though it often switches sides and sometimes it's both sides at once.

- Muscle weakness, specifically in arms

- Flushing in face/heatflashes. Usually one of the main warning signs that I'm about to experience my migraine for the day. I also experience what I believe is Red Ear Syndrome. Flushing around my ear, making it extremely hot and red, switches sides.

- Lightheadedness(though it could be just the POTS)

- Extreme brain fog

There's more, but I can't think very well right now. I'll gladly answer any questions if anyone has any.

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u/alcoholic_bugg420 — 6 days ago