u/amber_boing

I have been diagnosed with FND for the past month. I have been looking back at the symptoms I used to have in the past that may have been a cure that I had FND a couple of years before the diagnosis. I have always had issues with falling asleep and staying asleep for 12 years. I have ran out of medicine to try to help with sleep. I have a somewhat good medicine routine now. I'm on clonidine 0.3mg and Ativan 1mg. I have been on different SSRI paroxetine, Prozac, and duloxtine.

But anyways, I have vivid dreams almost every night. And I sometimes wake up in the middle of the night and see a cat or a person at the end of my bed. I see it there for up to a minute then it goes away. I'm fully aware of what is going on. Sometimes it will talk to me and I respond thinking it's real but the thing just vanishes into thin air and doesn't walk away. I do get sleep paralysis with heavy stress and I do have some trauma surrounding sleep.

It kinda started when I started taking the clonidine I was going through more stress at the time starting the medicine, but my doctors has ruled out that the medicine is causing it. I have done an EEG which was normal. I have done a sleep study as well and the results of that was I work up to many times throughout the night ( I woke up 22 times).

Has anyone else had this issue? What did you do to help the symptom?

I'm trying to figure out what my triggers are. I'm more curious on what everyone else's triggers are so I have an idea of what to be looking out for.

Additional question the more I walk the more the numbness and tremors get worse in both of my legs, is that normal with FND?

Thank you everyone for the help, the hospital and the doctor listened to me after I explained my situation. I got accepted into the Vanderbilt stallworth rehabilitation facility, and I found out today that my insurance approved the inpatient rehabilitation. I will be going there tomorrow, I'm excited to get started on working towards recovery. Everyone in this community has been super supportive and personally I think is the best community on Reddit. Thank you so much I really needed the words of encouragement and the support.♥️

Ps: If anyone has been at an inpatient rehabilitation facility and has any advice/stories that would be helpful.

I am new to the FND community I was diagnosed yesterday with it. My doctor is wanting to send me home from the hospital, which I would be totally okay with but I can't walk or take care of my basic needs like bathing, preparing food, or going to the bathroom. I'm 22 years old and my doctor told me it would be impossible to get into any form of rehab and that I should just go home. My mother told the doctor that she can't take care of me and I can't walk or even get out of bed, I fall down every time I try. Can the doctor force me to go home with it being a danger to my life? Will a rehabilitation facility even take me in?

I'm not sure what to do, if anyone has any additional questions please ask. Please help me I'm a bit lost, thank you for the advice ahead of time.

Update, I have talked to the case manager and I have seen PT and OT. I told them that I have no one at home to keep me safe, my parents work all day with the school system. I can transfer to the bed to the wheelchair and to the wheelchair to the toilet in the hospital. They said that was enough to go home. I ask how will I get food at home, my wheelchair does not fit in the bathroom or in the room where my bed is. They said I would have to buy a fridge for the area, remove all unnecessary furniture. I need to buy a ramp to help get me in the house. What the heck is going on I told them I feel unsafe going home and that I need to go to a rehabilitation facility. I told them that I have FND and that requires special physical therapy. The physical therapy I do at my normal place doesn't have any idea of how to treat FND. I told them I wouldn't be able to even get there. I have ran out of physical therapy sessions for outpatient. My insurance won't cover the cost to have someone come to my house. So I need the rehabilitation facility.

Update 2: The inpatient rehabilitation facility accepted me into their program. We are just waiting on insurance to approve the stay. Thank you to everyone that commented all of y'all are so sweet thank you so much