u/ambitiousinpajamas

▲ 68 r/CSULA

A CSULA employee raped me

I reported it to the school in 2018 and the Title IX lawyer simply suggested that he had probably reformed. I have no reason to believe that there was ever a formal investigation. He still works at the school. He is on the website rate my professors so I believe he teaches in some capacity. The school refuses to hold him accountable and fire him to keep students safe.

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u/ambitiousinpajamas — 7 days ago
▲ 83 r/cfs

For those curious about what the Stanford CFS clinic prescribes

  1. Low dose abilify
  2. Ldn
  3. Amitriptyline
  4. Ketotifen
  5. Dipyridamole
  6. Plaquenil
  7. Metformin
  8. Celebrix
  9. Memantine.
  10. Valtrex

This is just what I'm personally familiar with. Please feel free to add more that you are aware of in the comments section. I am just posting this for those who are on the wait list and wondering what to expect or for those considering this clinic.

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u/ambitiousinpajamas — 14 days ago
▲ 144 r/cfs

I have had ME/CFS for over a decade. I would describe my level of debilitation as moderate.  I’m mostly housebound but can occasionally grocery shop or meet a friend for lunch.  I’m too sick to work and its been that way for a long time.  The disease has gotten progressively worse.  I used to be able to drive to another city if needed and now a 15 minute drive feels like an excursion.  

For a long time I was very depressed about having gotten worse.  I assumed that it would just keep getting worse until I was bedbound.  Its rare to hear stories of people getting better. But I also knew that the belief that I was going to keep getting worse could be a self fulfilling prophecy. I once sat in on a med school lecture on stress and learned that stress impacts the outcome in 80 percent of diseases.

 I challenged my assumptions about why I believed I could only get worse and realized that if I had any agency at all in this I had to use it.  So I told myself that my destiny wasn’t pre-written and that I was going to be ok.  I know we can’t will ourselves to be better or else none of us would have this terrible disease but if there is even a 1 percent chance that our thoughts can influence our health than it is worth the gamble.

Some things that have really helped me is focusing on what I can do instead of what I can’t do.  I can still read and write.  I can still watch a show with my husband or play with my daughter.  Instead of focusing on what I have lost I try to live in the present and focus on the here and now and the joy I can find in everyday life.

On the medical side of things what has really helped me is going to the Stanford ME/CFS clinic.  The doctors there are willing to experiment and give you different drugs to see what might work for you.  I used to have terrible brain fog but now that I take Persantine I don’t really anymore.  I also take low dose abilify.

I hope this post can help someone feel like tomorrow might be better than yesterday.

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u/ambitiousinpajamas — 6 months ago