u/ann13xx

Hi everyone, I’ve just joined this group as I had a diagnostic laparoscopy for endometriosis today, there was no endometriosis found but the surgeon said I possibly have adenomyosis. But it can’t be 100% confirmed without a hysterectomy.

I should also add previous to surgery I had an internal ultrasound which showed a cyst that the DR who did the scan who was also my surgeon today thought was an endometrioma. But today the surgeon said there was no cyst during surgery.

I know nothing about adenomyosis I’ve only heard the term a couple times when researching endometriosis.

Just feeling confused and a bit lost, alongside the fact I’ve still had a surgery which will need time to recover.

Any help is appreciated if any can understand this and thanks in advance 🤍

I’m booked in for surgery on Tuesday and I’m absolutely terrified I honestly feel like ringing up and cancelling. I live in the UK and seen my consultant privately where she performed an internal scan and said I have a cyst and my ovaries are polycystic so she wanted to do surgery to check for endo. She then moved me to her NHS list for surgery as I don’t have insurance so I’ve only met her once. I just feel so scared about everything. She also wants to put the coil in during surgery but I am unsure. I’m hoping she will be able to remove the cyst as it’s why I felt something was wrong in the first place. But what if she doesn’t? I don’t want to end up living with pain everyday.

Sorry for just ranting I just feel so lonely and worried.

Hi everyone,

I have surgery in a few weeks for a diagnostic laparoscopy and I am absolutely terrified! I’ve had a laparoscopy before to remove my gallbladder and not sure if I’m more scared this time because I kind of know what to expect or whether I’ve blocked out how scared I was the last time.

If anyone could give me some recovery tips I would appreciate it or even offer some advice regarding how not to make myself ill with worry that would also be great.

I have a cyst on my ovary so I am hoping it will be removed as it is the reason I am having issues. Otherwise I don’t really have any symptoms thankfully so I am also concerned about the cyst not being removed or having worse pain after the surgery when I recover.

Just overall not feeling great about it at all!😞

Hi everyone I want to share my story to see if anything has similar experiences. For context I live in the UK, Northern Ireland to be specific.

I experienced an episode of extremely bad pain during a bowel movement over 2 years ago, the pain aftermath felt like a pulled muscle and I couldn’t stand up straight without it hurting. This led to me going to out of hours doctors who suspected it may be a cyst and advised me to see my GP. My GP then referred me for an external ultrasound which showed everything to be normal and healthy.

I wasn’t satisfied with this as although I didn’t experience that extreme pain again I was experiencing discomfort and pressure in my lower right side. My GP referred me to gynaecology and I waited for a few months with the symptoms continuing. I knew it would be a long time before I got an appointment through the NHS so I decided to book a private consultation.

At the private consultation the Dr took note of my symptoms which basically are the discomfort and pressure, bloating and discomfort during sex. The Dr preformed an internal ultrasound and immediately told me I have polycystic ovaries and a cyst on my right ovary that see thinks is an endometrioma so she is saying I could have endometriosis. She straight away said she would add me to her NHS waiting list for surgery. That was pretty much it I’ve just been waiting since then. I did receive a call recently to inform me I will be called for surgery in the next few months.

My reason for this post is I am concerned whether I should actually go through with the surgery or not. I am scheduled for a diagnostic laparoscopy. I’m concerned that I will be worse off from having the surgery e.g have pain etc. Although I know if I do have endometriosis I am better to be diagnosed with it incase it causes issues in the future.

I know this is a very long post but I appreciate anyone who has taken the time to read it and would really like any insights anyone has.

Thank you!