Deflated after BMT meeting
My dad has an IDH2 AML mutation and is currently in remission after two rounds of chemo. The first round didn’t work but the second round used drugs that were targeted for his particular mutation and that thankfully got him into remission. We had a rough time to get there as he ended up with CDiff and was in the ITU after his first failed round. He’s been home for a month which has been lovely.
We went for a meeting to discuss a BMT that he is scheduled to have next month. They basically said to him that if he doesn’t have the transplant the cancer will come back within 6-12 months which was hard to hear. They communicated the usual stats including 1 in 6 don’t make it through the BMT which again was hard to hear.
We couldn’t find a full match on the registers so my sister is donating and is a half match. The doctor was positive that the cocktail of drugs they will give him will be as if a full match was given which was comforting.
It was a pretty grim meeting and I know they have to communicate all the risks for the consent forms to be signed but I just feel so deflated. We’ve had a lovely time at home with him and it’s as if he was never ill. Knowing this big transplant is coming with so many risks is so deflating. I just don’t know how I’m going to make it though the next month with transplant and recovery but I know I have to be strong for him.
I just don’t know how to feel and to be honest I’m just scared this will go south :(