u/autoimmunegirly

▲ 3 r/multiplemyeloma+2 crossposts

Please help with just Input

Hello and happy Wednesday everyone. I know we are not doctors but I just would really appreciate any inputs of suggestions because I’m really tired and want to figure out what’s wrong with me. Appreciate anything really thanks so much.

So in context 33yr old female

I have had a lot of systemic issues that started 6/7 years ago and it started with night sweats. And I’ve been dealing with on and off chronic pain, nausea, fatigue etc.
but recently things have been worse and more consistent
- night sweats
- around 6pm every evening I get like hot flash feeling like feeling sick internally and under skin
- bone/joint pain that changes areas and fluctuates can be dull with also sharp pain that comes in waves
- muscles twitches a lot
- numbness and specially in toes these days
- fatigue
- nausea lack of appetite at times, vomitted a few times the other month. Always in the evening.
- lost almost 20lbs without trying (everyone keeps asking if I’m okay)
- swollen fingers in the morning

Basically my rheumatologist says my Ana could be undifferentiated connective tissue disease but does not explain a lot of my symptoms

Oncologist says my levels of lambda bands are small and so it’s not hematology issue. And that my electrophoresis results can be a UTI which I don’t have right now.

I am honestly just so tired of feeling this way and I want to feel normal again. I literally am in tears every time I go to the doctors because I’m tired.

IMMUNOFIXATION, SERUM    
IFE INTERPRETATION
- IgG lambda monoclonal band present.
(This was on multiple blood tests and was present but not present in urine)

PROTEIN, TOTAL AND PROTEIN ELECTROPHORESIS, URINE    
PROTEIN, TOTAL, 24 HR UR 136 mg/24hr
PROTEIN/CREATININE RATIO 0.082
ALBUMIN 20%
ALPHA-1-GLOBULINS 3%
ALPHA-2-GLOBULINS 20%
BETA GLOBULINS 23%
GAMMA GLOBULINS 34%
INTERPRETATION
Pattern consistent with glomerular proteinuria.
No abnormal bands suggestive of monoclonal free light
chain (Bence Jones protein) detected.

ALPHA 2 GLOBULIN 0.9H
ABNORMAL PROTEIN BAND 1 0.1H
ABSOLUTE EOSINOPHILS 10L
SED RATE BY MODIFIED WESTERGREN 22H
EGFR - ranges from 72-88 usually(normal but low for my age)
My other results are either within or borderline normal so did not bother to post.

ANA SCREEN, IFA Positive
ANA TITER 1:320 Nucleolar nuclear
ANA TITER 1:80 speckled nuclear
(I had same ANA patterns last year but it was lower titer at the time and it has not gone up)
***EVERY specific Ana test I’ve taken has come out negative though like literally every autoimmune test)

URINALYSIS REFLEX (test was done three different times and showed up on each)
KETONES trace
PROTEIN trace
LEUKOCYTE ESTERASE Trace(sterile)
RED BLOOD CELL COUNT 3.95
CREATININE, RANDOM URINE 234 mg/dL

KAPPA/LAMBDA LIGHT CHAINS FREE WITH RATIO, SERUM    
KAPPA LIGHT CHAIN, FREE, SERUM 11.4mg/L
LAMBDA LIGHT CHAIN, FREE, SERUM 11.4mgL
KAPPA/LAMBDA LIGHT CHAINS FREE WITH RATIO, SERUM 1.0

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u/autoimmunegirly — 1 day ago