u/bah891235

Hi all, curious to know what medications those with UCTD are taking. I’ve been on plaquenil for about 8 months with a noticeable improvement in symptoms, but have recently been having an uptick of flares and symptoms return.

Because UCTD is not a defined disease, I know often many autoimmune medications are used off-label for symptom management. Just wanting to hear other’s experiences and what has worked/not worked for them.

I have another appointment next month, and am trying to figure out if there are additions we can make to my treatment plan, or if my expectations are too high and it normal for medication to only make symptoms more manageable. I suppose I thought plaquenil was going to erase my symptoms, LOL. While it certainly as helped, I’m left feeling like there has to be something more than can help.

Any advice is welcome. Thank you!!

Hi all, coming on here to ask for advice. I’ve been on hydroxychloroquine for 6-months now with surprisingly great success. These past 7-8 days I was hit with a pretty significant flare, and curious to know if this is something I should be messaging my Rheumatologist about. Is it wrong to let them know a flare had sparked up? Curious if they would recommend a short steroid taper or other option. Unsure if I should just wait until my next follow-up appointment or if a flare warrants a message.

Thank you!

I have been doing well on Hydroxychloroquine for the past 6 months or so after starting, and had a pretty noticeable reduction in symptoms which is great. This past month I started getting long lasting pins and needles in both arms, hands, feet, and legs, all concurrently. (At times lasting several hours).
I am curious if anyone else experiences nerve pain as a
result of their autoimmune disease, or perhaps this is entirely distinct. When new symptoms arise, I try to determine if it’s related or not, as I feel a lot of stuff just gets blamed on the disease.
I would love to hear if anyone has dealt with this before my next Rheumatologist visit!

Hi all, I was diagnosed with UCTD earlier this year but my Rheumatologist has said a couple times the term “early lupus”, which trips me up a bit. I have the conventional symptoms of lupus just don’t have strong specific antibodies, so he has told me while it presents like lupus he feels more comfortable diagnosing as undifferentiated.
Curious if anyone has experienced this before? I’m being treated and monitored (on hydroxychloroquine), I think it just leaves me confused when explaining it to people. Would anyone be able to share some insight on this term “early lupus” or any personal experience with this? Thank you!