u/bashfulxbuttercup

Unsure

Long story not really short: a relative had an unexpected cancer diagnosis. At the time of discovery, it had already spread. They had two major surgeries and were told the cancer was successfully removed, but to still do chemo. They chose not to do chemo, and a couple of months later, had a seizure. While in the hospital, they coded and were resuscitated, and it was discovered that the coding happened due to an extremely weak heart, working at essentially 10%. They had emergency surgery that went well, but after about a week and a half (they were sedated, intubated, extubated, woken up, had a biopsy, and moved to a regular room all in this span), the relative got fed up, ripped the tubes out, and refused treatment. They chose hospice rather than radiation for the confirmed GBM from the biopsy but are now refusing treatment there, so they are being sent home.

How to deal with this? We are respecting their wishes, but since hospice is not going to help, I just don't know how to best care for them. I will be helping their spouse, but neither of us knows how to do this. Their spouse is pretty old and has terrible hearing. I am so nervous as I want them to live as comfortably as possible, but with absolutely no medication, limited mobility (they can't do anything really - they have to be bathed, taken to the bathroom, etc.), and an extremely weak heart, I am absolutely freaking nervous.

People have tried to convince them to do surgery, to take meds at least, to accept treatment, but they are absolutely refusing. They just want to go home; they are tired; they are done. 😔 They were given 3 months without treatment and 12 with, but I assume the 3 months is with medication? And it does not take into consideration their weak heart 💔

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u/bashfulxbuttercup — 2 days ago