u/bigeyesASG

i recently noticed that my symptoms are changing. since i have FND i always had seizures during less than 2mins and absences during not really long. but since the beginning of august (maybe before?) my seizures and absences are not the same anymore. i'm like unable to move or react while being conscious (like before) but now, it's not just absences or seizures but the both at the same time with really "lighter" convulsions. and it could last more than 40mins.

but, even if it's odd, i'm happy living with my partner now, meaning i'm not alone during this "absences-seizures" (don't know how call this). yesterday i had one of those, they were beside me, taking my hand and asking me yes-no questions while i was able to respond with squeezing their hand (one squeez = yes/two squeez = no). my partner also tried to make me think about other thing than being just on the sofa and doing "nothing", so they read me the book they're reading. strangely, it was not so horrible than normally.

i think they're not scared of my seizures/absences anymore. i'm so happy having them in my life and having they for partner!

Hi!

I want to know if other neurodivergent people have hearing/auditory problems.
I’m explaining myself: i have ADHD and i feel like i don’t hear well. But, i had an hearing exam and my hearing is really clean (the guy said he didn’t understand why i asked for an hearing exam). But i still feel like my hearing is really bad!

I talked about it with my girlfriend and she said it can be because of my ADHD, like all the sounds are at the same volume for me.
So, anyone living this?

Some of my symptoms are non-epileptic absences (i don’t know if it’s called like this) and in this ones i can hear everything but my vision is blurry and i’m conscious. And, all the time, my family and my partner wants to stop this symptom. But i can’t just "end it"? Like, if i want, i didn’t have this at all!

And tonight, i had one non-epileptic absence and my mother tried to call me a lot like it can "wake me". My sibling tried too because our mother told them too. And after, she told my father to "wake me" like: "reconnect them!" and she was almost angry at me, because i didn’t respond. But i wasn’t able to.

And about my partner, they wants to "wake me" too. But, unlike my family, they understood (after i explained to them) they stopped trying and just let me "finish" my non-epileptic absence. (Sometimes they still try to "wake me", but just because i need to get out of a bus, subway… or because i’m about to fall.

And that’s so frustrating! I can’t just end this symptom nor my seizures or any other symptoms!
It’s almost like, they think it’s annoying them more than me. But they don’t live every symptoms like it’s a burden for anyone knowing me and seeing me when i have theses…

Hi!

Recently, I saw a lot of posts about being misdiagnosed for BPD and being a girl (or being raised as a girl…).

I don’t know if it’s the same in every country but in France (where I live) it’s really common being misdiagnosed with BPD and not autistic. And as a person raised as a girl with a lot of struggles, I was almost diagnosed with BPD at 16 years old (in France you need to wait 20 years old for a BPD diagnosis, so at 20 years old, I was diagnosed with BPD).

But, with all this posts, I began to question my BPD diagnosis and I realized that I never really had a "abandon fear" and when my parents talk about my BPD, they talk more like it’s autism, like "her brain work differently", "she doesn’t have social codes" or things like that. But I don’t remember people with BPD struggling with social codes.

So, anyone lived this? And, if yes, what did you do for understanding it’s not BPD but autism (or if it’s both)?

Hey !

Je sais pas trop si c'est le bon sub pour demander conseil mais je tente ici (j'ai penser au sub petsitting mais il est anglais, donc je me dis que ce serait plus simple de demander conseil ici)

J'aimerais faire du dog sitting mais je ne sais absolument pas où me proposer en temps que dog sitter. J'habite très proche de Paris (si cela peu aider pour trouver où se serait le plus judicieux de me proposer).

Si vous avez des idées ou pistes, je suis plus que preneuse !

Hey!

Je suis à la recherche d'endroits où pouvoir participer à des parties de JDR ou même des clubs pour jouer à des jeux de société mais sans devoir payer de trop pour participer (ayant peu de moyens, c'est difficile pour moi d'utiliser beaucoup d'argent pour mes activités personnelles).

J'habite proche de Paris (je peu me déplacer très facilement dans Paris et ses alentours).

Si vous avez des adresses ou des sites pour trouver des adresses, je suis plus que preneuse !

Hey!

I want to ask something about heat and being neurodivergent.
I have ADHD and I’m reaching for an autistic diagnosis.
So, since forever I really live bad heat (I think it’s really hot when it’s 20°C - 68°F) and at the moment, in France, in Paris (where I live) it’s almost 40°C - 104°F and I want to know if heat sensitivity is more present in neurodivergence ?

Also, I can’t drink anything if it’s not icy (like really cold water or anything i want to drink) and I know drinking cold water (or anything cold) make hydratation less "fast" (like déshydratation is faster). So, anyone have an idea for staying hydrated ?

And, a little last question. Are there other people who can’t stand their own skin with the heat?
I literally want to take off my skin and I can be mean with other because of my sensitivity and the fact I can’t process all the information I receive (my skin, the heat and others…)

Hi
Last weekend i was at a nightclub with my partner and some of their friends.
Everything was great at the beginning, i was having fun with my partner’s friends and it was nice (it was in our way to the nightclub).
But, after some minutes in the nightclub i began to feel really bad and i went outside where i had dissociation (i wanted to go outside alone but my partner knows me too well and went outside with me, thanks to them).
After that i wanted to cry and i was like "i’m sorry, I’m ruining the night!" and they literally said "if you want, we can go home".
And i didn’t want to go home! Because i wanted them to have fun with their friends.
At the end, we went home after like 1 hour in the club because my partner said "health before everything" and i’m so relieved i have a partner like them. Who wants me to be okay before everything. (I don’t know if that make me a bad partner, wanted to be the priority of my partner).

I think i know why i had this issues this night.
I have a lot of anxiety in the moment with big changes (i hate changes) and i had my diagnosis (about FND) recently (and i think it begins to affect my brain knowing it’s not psychological).
But also because of the bright light and the very noisy environment in the club (with so many people, that makes too many informations for me at one time).

But i’m still angry at myself because i was able to go to nightclubs before! And for now i can’t!
I hate having FND, my body (and brain) reminds me time to time i can’t have a normal life and that is so frustrating!

The last Monday I went to a neurologist (as my psychiatrist recommended me). I had the luck to have an appointment less than 2 weeks after taking the appointment.

And for the first time in 6 years and a half, the neurologist said what I live isn’t psychological. I almost cried in her office. I even asked her if it isn’t psychological, and she said "it’s neurological". I didn’t believe it and I needed a little time to process the information. I called my partner for thanking them recording one of my dissociation because it’s this video that made me asked seeing a neurologist.

I don’t know if I really processed this but it’s so much of a relief!
I think it’s still difficult for me to accept that I needed so many years to received this diagnosis. Because I saw some doctors and even neurologists saying that I was faking or it was just in my head or it was psychological. I even had an exam where the neurologist saw some things were not normals but didn’t want to search any further. I think I’m still made at them. But I don’t want to living in the past because I finally know what I live.

I still have a long way to believe I never faked my symptoms (I remember talking to one of my friend the night before my appointment of Monday saying "if she say it’s psychological, I don’t know how I’ll react". I hate the doctors making me feel it was in my head even if I knew it wasn’t!).

Also! This neurologist asked for one of her contact in a hospital where they have a FND specialist, even if it’s just for one appointment, she said it can help me.