u/bootyandthebrains

Hi all,

I hope everyone is doing as well as can be expected!

I recently got my SFN biopsy results back as positive. I’m now beginning the process of trying to get IVIG covered.

My pain is honestly not managed well - codeine is the only thing that works. I have to alternate between LDN and codeine so it gets a little complicated/not ideal.

I feel as if my pain is getting worse and spreading up the legs and arms and I am not sure what to do. I haven’t gotten a straightforward answer as to how I can slow things down? or at least not make things worse?

Is activity good or bad? Are there other things I can be doing to support nerve regrowth?

Curious if anyone who has an SFN diagnosis has an opinions.

much love

Hi! This might be random, but I could have sworn someone mentioned paying for these at LiB.

Wondering if someone could confirm or deny their existence? I know I’ve seen them at some other festivals.

I have a few medical conditions and IV Drips help sooooooo much. Would love to know if it is a thing so I could book ahead lol