u/boxcar-violet

Has anyone had issues with sensation of throat/front neck pulling, fullness, or choking with a confirmed spinal leak?

Hi there. I am just looking to see if there are other people that have been found to have venous sinus stenosis without clear signs of IIH (ie no papilledema, normal opening pressure on LP). It seems tricky to find out the incidence of this without looping in the IIH diagnosis. Thanks!

Looking for answers from confirmed leakers who did not necessarily present with a classic headache - were your symptoms ever primarily more pressure than pain in either the head, nasal bridge, palate or ears?

For those of you who had a confirmed leak or venous fistula and did NOT have headache as your primary symptom, what were your symptoms? Thank you!