u/bredditmh

I feel failed and scared. Any insight would be helpful.

Has anyone experienced this or know someone who has?

30F, was super active and fit prior to this ordeal. the surgery was when I was 28.

Had a laparoscopy for diagnosing endometriosis because I was struggling with infertility and my surgeon most likely severed my illioinguinal nerve and my genitofemoral nerve. Woke up screaming in pain about my right side. Everyone downplayed it to me then, as well as in every medical record and note. So 1.5 years later I still have this severe pain and it further prolonged my fertility journey. I’ve seen multiple specialists, had multiple trigger shots and nothing helped until I saw a plastic surgeon who put me on 900mg gabapentin which helped reduce my symptoms by about 75% I’m grateful for that but it took me a year of advocating and living in hell (I do not say that lightly) to even get there. 

Now I’m doing IVF and will not get to take the gabapentin while pregnant which horrifies me. 

I’m so lost and sad and don’t know what to do. I’ve had mris, ct scan, and they looked normal. Plastic surgeon said surgery probably wouldn’t  help because he’d have to fish around my body for the other half of my nerve(?). He also said getting pregnant might help my pain because of hormones? I just have such a trust issue after all this. 

I’ve felt pushed along and dismissed this whole journey and most of all I just wanted to start my family. Now I’m scared that I’m going to be miserable and in substantial pain my whole pregnancy and beyond.  I need someone to give it to me straight about what is going on and what to do next to help myself. 

Also I have extremely detailed messages between my surgeon and I where I explain how much pain I’m in, how worried I was and he reassured me time after time it was fine. I knew it wasn’t, it still isn’t. People in my life advise me to pursue a malpractice case. I just want to feel better. 

Lower right abdominal pain, groin pain, numbness to my pubic area and down my inner leg, muscle cramping, tightness, clothes hurt, lifting heavy things causes delayed terrible pain. I’m so depressed and need clarity. 

reddit.com
u/bredditmh — 18 hours ago

I feel failed and scared. Any insight would be helpful.

30F, was super active and fit prior to this ordeal. the surgery was when I was 28.

Had a laparoscopy for diagnosing endometriosis because I was struggling with infertility and my surgeon most likely severed my illioinguinal nerve and my genitofemoral nerve. Woke up screaming in pain about my right side. Everyone downplayed it to me then, as well as in every medical record and note. So 1.5 years later I still have this severe pain and it further prolonged my fertility journey. I’ve seen multiple specialists, had multiple trigger shots and nothing helped until I saw a plastic surgeon who put me on 900mg gabapentin which helped reduce my symptoms by about 75% I’m grateful for that but it took me a year of advocating and living in hell (I do not say that lightly) to even get there. 

Now I’m doing IVF and will not get to take the gabapentin while pregnant which horrifies me. 

I’m so lost and sad and don’t know what to do. I’ve had mris, ct scan, and they looked normal. Plastic surgeon said surgery probably wouldn’t  help because he’d have to fish around my body for the other half of my nerve(?). He also said getting pregnant might help my pain because of hormones? I just have such a trust issue after all this. 

I’ve felt pushed along and dismissed this whole journey and most of all I just wanted to start my family. Now I’m scared that I’m going to be miserable and in substantial pain my whole pregnancy and beyond.  I need someone to give it to me straight about what is going on and what to do next to help myself. 

Also I have extremely detailed messages between my surgeon and I where I explain how much pain I’m in, how worried I was and he reassured me time after time it was fine. I knew it wasn’t, it still isn’t. People in my life advise me to pursue a malpractice case. I just want to feel better. 

Lower right abdominal pain, groin pain, numbness to my pubic area and down my inner leg, muscle cramping, tightness, clothes hurt, lifting heavy things causes delayed terrible pain. I’m so depressed and need clarity. 

reddit.com
u/bredditmh — 18 hours ago