u/broken_joints_1906

Okey question for all the people that use canes and/or forearm crutches. I recently started using both depending on how bad my mobility is on that day and it’s helping tremendously. What I’m getting nervous is the fact that the summer is starting to come to its slow end and I’m starting to think about how my mobility aids are going to affect my college life. My big thing I’m worried about is my crutches specifically being in the way of aisles and stuff during classes. So my question, where do I put my crutches?? My cane folds up small enough to put in my bag but my cane doesn’t so I’m not sure. Thank you in advance!

So I recently got diagnosed with HSD and have started to need the assistance of a cane or forearm crutch. I’m going home for the first time since I got my mobility aids and I’m a little nervous about it. I didn’t get my diagnosis until almost 20 mostly because my parents thought that I just needed to “work out more” and that would fix all my problems. My step mom and sister both claim to have EDS but refuse to get tested and refuse to acknowledge that they might not. Now I am not one to say someone does or doesn’t have something OBVIOUSLY. However neither one of them has ever had any problems with subluxations, dislocations or anything of the sort. HOWEVER they are both very bendy, but that’s besides the point. The thing that is worrying me is I don’t pay for my medical bills, my dad still does, and despite getting THREE separate physical therapy referrals my dad is refusing to let me go to PT. The thing that is frustrating me the most is part of the reason that they refuse to let me go to pt despite three separate doctors referring me is because my dad keeps comparing me to my step mom and sister who both have much more joint stability and are able to be much more active. Because of this I’m worried my dad especially is going to be weird about my crutches and cane. And I DONT need another voice telling me that I’m “faking it” or that “I’m too young and healthy looking to need those” when I already feel like an imposter needing mobility aids at 19. I also have been without them for 19 years and I could more than likely go for another week and a half while I’m there but I now know how much better my days can be using them and I know at some point I’m going to have to use my mobility aids in front of them.

So I recently got diagnosed with HSD and have started to need the assistance of a cane or forearm crutch. I’m going home for the first time since I got my mobility aids and I’m a little nervous about it. I didn’t get my diagnosis until almost 20 mostly because my parents thought that I just needed to “work out more” and that would fix all my problems. My step mom and sister both claim to have EDS but refuse to get tested and refuse to acknowledge that they might not. Now I am not one to say someone does or doesn’t have something OBVIOUSLY. However neither one of them has ever had any problems with subluxations, dislocations or anything of the sort. HOWEVER they are both very bendy, but that’s besides the point. The thing that is worrying me is I don’t pay for my medical bills, my dad still does, and despite getting THREE separate physical therapy referrals my dad is refusing to let me go to PT. The thing that is frustrating me the most is part of the reason that they refuse to let me go to pt despite three separate doctors referring me is because my dad keeps comparing me to my step mom and sister who both have much more joint stability and are able to be much more active. Because of this I’m worried my dad especially is going to be weird about my crutches and cane. And I DONT need another voice telling me that I’m “faking it” or that “I’m too young and healthy looking to need those” when I already feel like an imposter needing mobility aids at 19. I also have been without them for 19 years and I could more than likely go for another week and a half while I’m there but I now know how much better my days can be using them and I know at some point I’m going to have to use my mobility aids in front of them.