Struggling to move forward after misdiagnosis
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Hi everyone, over the past few months I've gone to my PCP over complaints with joint pain, breathing problems, POTS symptoms, etc. After doing a large amount of autoimmune blood tests and everything coming back normal/negative, I was referred to a rheumatologist. After going over my medical history and mentioning both my mother and sister have hEDS, the rheumatologist performed the beighton score on me, giving me a 0/9 despite proving atleast a score of 4/9.
She explained to me that despite the high probability of my issues being related to connective tissue, because i am unable to bend my fingers i am not hypermobile nor have any form of connective tissue disorder. Ultimately the appointment ended with her telling me she doesn't know what is wrong with me and diagnosed me with Fibromyalgia.
Since this appointment I've experienced my first shoulder subluxation followed by a toe subluxation that happened yesterday.
This situation has left me frustrated and the diagnosis feels like a skid mark on my medical record. I am wondering if anyone else has had a similar experience with doctors and/or what they did to overcome the ignorance. Any general advice or comments are also appreciated!