u/cannabaker99

First time poster here, but I'm a lurker. I am feeling despair and I feel like I'm in such a dark, dark place with this pain.

I have bilateral trigeminal neuralgia and I'm in agony.

My neurologist (which I just got in to see this January, it took 9 months to finally get in) and I have worked together and I am on a daily cocktail of: Carbamazepine 1600 mg, amitryptaline 25 mg, pregabalin 150 mg, and baclofen as an emergency medicine up to 60 mg daily. and I'm already on so many other medications for my other chronic illnesses.

I am in agony no matter how much medication I'm on, no matter how much I go up or change or add meds. We are discussing Botox injections, which I'm really afraid of, but I am willing to do ANYTHING to have somewhat of a normal life again.

Thanks for listening to my vent. My life has been changed dramatically since I developed this pain. I just want some normalcy again. All of this is traumatic and I'm very scared.

I've been using my cpap for only 2 nights now, but I'm getting a big, red, raised up pressure sore on the bridge of my nose. I'm using the standard mask that goes over the nose and mouth. I called my cpap supplier and asked for advice and they said the respiratory therapist would call me back this afternoon. He never called back and now they're closed for the weekend and I'm unsure what to do. Can I get some advice on what to do about the pressure sore over the weekend? I tried putting a large bandaid over it last night but that didn't seem to help. It's quite irritated and painful at this point.