What's the most painful non-crohns thing you've experienced and how did it compare to a flare??
Have you ever gone through something that most people would consider extremely painful like kidney stones, broken bones, appendix, etc. and found yourself handling it surprisingly well??
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What's the worst part about living with an autoimmune disease???
reddit.comWhat's your biggest Crohn's victory?
What's something you're proud of accomplishing?? It can be anything, maybe even surviving a tough flare.
What do you miss most from before Crohns?
Crohn's changes much more than just our digestive system. It completely changes our lives in ways we never imagined.
We have to adapt to this new normal whether we like it or not. Looking back, what's the one thing you miss most from your life before Crohn's showed up?
For me, it's the ability to live life to the fullest. I'm tired of being in pain every single day. As I'm writing this, I'm going through one of the worst pain episodes I've ever experienced. I honestly feel like crying. Off topic, if any of you have tips for managing pain, I'd really appreciate that!!
What's the lowest weight/bmi you've ever recorded??
I'm currently going through this phase with a weight of 108 pounds and bmi 14.3.
Is my weight really that bad??
Hi, I’m a 21M, 6 ft tall and currently weigh around 108 pounds. I was diagnosed with ileocolitis a few months ago, but honestly my weight has been a problem for years now. I haven’t gained even a single pound in almost 5 years.
I thought treatment might finally help me gain weight, and I even tried prednisone, but surprisingly I still didn’t gain anything on it.
So I was wondering is my weight bad for my height?? Has anyone else with ileocolitis struggled this much to gain weight even after starting treatment? Any advice on what helped you guys would be really helpful.
Worst advice you received after your Crohn’s diagnosis?
If I have to choose one from a plethora of advices I have received I'll go with, after my diagnosis my aunt came home and she said me and my family that he got this because he searches his symptoms on Google and once he stops doing so he'll get better?????? I'm not even kidding I wanted to cry so badly after hearing that, how can someone be so insensitive for God's sake.
What’s the worst comment you received that genuinely upset you or made you want to cry?
For you, what’s the one thing Crohn’s has taken from your life and one thing it’s taught you that you'll never forget?