u/cemar004

It feels silly to celebrate.

Really feeling some kinda way. I'm(M34) 2 years seizure free on Tuesday and it just feels silly to even acknowledge it much less celebrate. I had 10-20 focal unaware seizures daily for 5 years and I know it was bad, I don't remember a lot of it but looking at photos of myself and reading my journals it was clear it was bad. So I understand how fortunate I am to have made it 2years free but it just feels dumb. Partly because everyone around me has been so normalized to me not having them that I'm the only one who even thinks about it anymore. I don't necessarily need constant tending to in regards to it but sometimes I need to remind people it happened(funny since I don't remember half the past decade) idk. The fallout from the seizures has been immensely difficult to process, the doctors, the fear, the unknown, long term prospects. Its all a lot, but I supoose I hide the weight of it all well so people think I'm the old me, but I'm not, many parts of who I was are gone. . . . .Part of me wants to just treat myself to all my favorite things and activities for my anniversary but I just feel like its self indulgent? I feel like I shouldn't? I also just can't shake that feeling that the other shoe is about to drop and I'll start seizing again.

I don't know how to feel about it.

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u/cemar004 — 6 hours ago

Identity??

Anyone else struggle to not make this seizure situation your whole identity? But also wanting to acknowledge it and be understood?

I've neen finding myself struggling with what it all means in regards to identity and who I am. Seizures are one of the worst things I've ever experienced and they effect my daily life even now that my seizures are controlled. I don't want to make seizures my whole personality but at the same time I want to have what I've been through be seen and validated as immensely difficult? Especially after telling myself it wasn't that bad and I just wasn't strong enough to handle this better or faster than I did. . .

Thoughts?

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u/cemar004 — 1 month ago