Newbie seeking insight
Last week I was in the hospital for pain associated with two kidney stones for the first time. The CT scan showed secondary findings of ADPKD and a small amount of fluid around my heart. It's all been overwhelming because my father died of kidney disease and complications from diabetes.
I just left an appointment with a GP (I couldn't get into see my normal doctor) and I found him to be incredible dismissive because my father's kidney disease was because of diabetes. He dismissed the fluid around my heart because its very small and also a cyst on my liver. He also said all my "levels look fine".
He gave me a referral for a nephrologist who I hope shows much more care and concern because as someone who has thought she was healthy her whole life this has been very alarming.
For those of you who have been through this before, are there any insights into what comes next or questions I should be asking in my next appointments? Also, additionally if anyone has an amazing Los Angeled nephrologist they highly recommend I would be really open to hearing that.
Thanks for letting me share! Feeling very alone after a really disappointing appointment and needed to post.