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u/cherrypie47

r/braintumor r/braincancer
▲ 10 r/braintumor+1 crossposts

Brain cancer Discord!

Hi everyone. I’m a grade 3 Astro idh mutant diagnosed in May of this year. 28 y/o female. I made a post a while ago asking about group chats or servers, to stay connected with others. But I didn’t get much of a response, which makes me think maybe we have a need for that?

Let me know if that’s something you might be interested in! If there’s a need I’ll make one myself, potentially open to having a couple moderators run it with me.

Bonus points if you have any ideas for a good server name lol!

Comment if you’re interested ❤️

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u/cherrypie47 — 5 days ago
▲ 25 r/braincancer

New diagnosis

Hi everyone. I want to start by saying I have really loved lurking in this subreddit and appreciate the kindness and community that exists here.

I got my diagnosis in May. Grade 3 astrocytoma idh mutant type. Immediately had surgery in the hospital where they were able to remove a large portion. I just finished with egg freezing (ouch) and am set to start radiation tomorrow. Chemo will follow after.

It’s been such a whirlwind and I’m still coming to terms with everything. It’s hard to accept that this will follow me around for the rest of my life, and could likely be the reason why I die.

I have a great support system that I am so thankful for, but I’m still feeling quite isolated through all this. I wondered if there is some kind of discord or other online community that I might be able to join, where people are active and make connections? I’m 28 f and I live in AZ, so if anyone’s in AZ as well I’d love to connect. I also think I just wanted to share my story with people who might understand. If you made it this far thanks for reading 💛

u/cherrypie47 — 14 days ago