u/chuchuone

Hello everyone,
I wanted to share an update about my father.
He was diagnosed with primary splenic angiosarcoma with liver metastases after an emergency splenectomy due to a spontaneous splenic rupture.
Today we met with an interventional radiologist who carefully reviewed his CT scans. The doctor was honest with us and explained that the overall prognosis for primary splenic angiosarcoma with liver metastases is unfortunately poor. At the same time, the doctor also believes my father is a candidate for TACE (transarterial chemoembolization) to treat the liver metastases.
Before today, I had never even heard of TACE or interventional treatment as a possible option. Until now, we had only been told that the next step would be systemic chemotherapy, so this recommendation came as a surprise to us.
I understand that every patient’s situation is different, but because this disease is so rare, I would really appreciate hearing from anyone who has experience with TACE for angiosarcoma or liver metastases.
If you or your loved one has undergone TACE, could you please share:
Why was TACE recommended?
Was it combined with systemic chemotherapy?
Did it help control the liver tumors?
What side effects did you experience?
Looking back, do you feel it was worthwhile?
I am especially hoping to hear from patients, caregivers, or medical professionals who have firsthand experience with angiosarcoma.
Thank you very much for taking the time to read this. Any information or experience would mean a great deal to my family

23 days ago, my father suddenly developed unbearable abdominal pain in the early morning and was rushed to the hospital. After examinations, doctors found that his spleen had ruptured.
He underwent emergency splenectomy, and thankfully, he survived the surgery. At that time, our whole family finally felt relieved.
However, the pathology results brought devastating news. The tumor that caused the splenic rupture, along with suspicious lesions found in his liver, were examined and confirmed to be splenic angiosarcoma with liver metastasis.
This is an extremely rare disease, and primary angiosarcoma occurring in the spleen is even rarer. From the information we have found, this disease is very difficult to cure.
The doctors advised me not to tell my father how serious this disease can be because they worry the news may emotionally destroy him. Right now, he is recovering and his physical condition is still good, but for our family, it feels like there is a time bomb that could go off at any moment.
We are about to start chemotherapy, and I am honestly very scared.
I would be incredibly grateful if anyone who has experienced a similar diagnosis, family members of patients, or medical professionals with experience in angiosarcoma could share their stories, advice, or information about treatment options.
Thank you so much for reading.