u/confessionsofacynic

▲ 6 r/UCTD

Mobility Aides

Hi! I've posted here before I'm 20F newly dx with UCTD trying to make sense of my experience. I started using a cane shortly after diagnosis as my main symptoms are joint pain and fatigue. My knees are particularly bad and I have fallen many times. I've tried toradol, Prednisone and celebrex which have all helped but are not permanent solutions. I had planned a vacation before I got sick and the vacation has tons of walking in a big city. My church offered to pay for a rascal carbon cruiser foldable power chair to use for trips to museums, airports, vacations, etc. My physical therapist said that using it for the vacation was a good idea. But I feel weirdly guilty? Like using a wheelchair when I can walk. I have such severe fatigue I don't leave house as much as I used to and struggle with daily tasks. My mom comes over to my apartment to help me with chores and my boyfriend helps me with mental tasks (I have serious brain fog). I feel so seriously disabled by this condition I'm barely functioning right now. I think the wheelchair would give some independence back but I don't know if I'm being dramatic. Does anyone here have experience with mobility aides or anything of the sort? What helps?

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u/confessionsofacynic — 4 days ago
▲ 15 r/UCTD

Question about "mild" symptoms

20 f. I was recently diagnosed r/t ana 1:1280 centromere pattern, severe joint pain, facial flushing, extreme fatigue. All my sub-serological workup were negative so I got a UCTD dx. I am now disabled and can barely work part time, I am really struggling. I read that UCTD typically has a mild clinical course but I am scared that if this is mild what the hell is severe. I started plaquenil a week ago, currently take 200mg celebrex bid, 650 ER Tylenol bid, am currently on a Prednisone dose pak and got a toradol shot a few days ago. I'm starting physical therapy and see my rheum in 3 months. Can anyone shed some light or offer any advice?

edit: and recurrent pleurisy + costochondritis

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u/confessionsofacynic — 12 days ago