Refusing to use overnight catheters
I have spina bifida meningocele which means i can feel when i need to pee, i just cant hold it in or pee on my own so i self cath. I started refusing overnight bags when i was a young teen and i had ckd 3/4 at the time so people werent and still arent happy yet they ignore my problems.
When i use bags, im assuming because i move so much in my sleep the catheters just fall out, or stop working or scratch the inside and HURT ALOT... But because i fell asleep thinking i was safe i usually sleep all night and then wake up to an achingly full bladder and soaking bed with an almost empty bag... And this happens alot, enough for it to be better sleeping without a catheter and somehow letting my body wake me up every 2 hours. I tell all my drs that i think its worth losing sleep a little sleep and occasionally having the same experience with the overnight catheters than using the overnight catheters and having that experience 2x the amount. Regardless its going to cause damage but all they think of doing is suggesting different overnight catheters? Or lube for the scratchy problem? But that has never helped.
Does anyone else experience this??