u/crabmeatcakes

Hi! I’m going to soon be put on prednisone by my doctor for AIH, however I’m really scared of the side effects. I’m someone who’s already very conscious about my appearance and although I am at a normal weight now, gaining any more would make me spiral. On top of that, I already struggle to sleep because of how busy I am and my work schedule. I’m just really worried this will have a horrible effect on me because apart from the abnormal blood tests, I feel alright, so I’m just upset I guess that I’m about to launch myself into a state of discomfort and feel like actual trash due to the prednisone when I feel fine now. Any suggestions/tips to get through it? Specifically the fatigue and suppressing the urge to overeat on the medication?

Hi everyone, I haven’t received any formal diagnosis but I feel like I need to vent and hear people stories regarding AIH since I was recently told by a doctor at urgent care this could be the cause of my symptoms. The morning of July 4th I woke up with yellow eyes all of a sudden, like overnight something happened. It wasn’t crazy bad and my skin still looked normal so I just shrugged it off. Since May however I had been feeling like no matter what I ate I would get so bloated (like 6 months pregnant bloated) and it would take so long to come down. I also shrugged it off because I just assumed my stomach was going through a phase. I had a blood test scheduled just for a check up unrelated to the symptoms and my ALT came back at 584H and AST at 675H, along with 2.4 Bilirubin. For context, I’m a 20 year old woman, I rarely drink, smoke, or eat fatty foods. I’m at a normal weight, no history of anything in my family. Since then I’ve probably had 6 more blood tests after going to urgent care and the results stay the same, except more recently my smooth muscle antibody levels came back at 58H. I got an ultrasound and it came back completely normal except for an ever so slightly enlarged bile duct. I finally received a referral for gastroenterology and I’m just wondering what the testing process was for you? Things you wished you would’ve known/asked your doctor? Any difficulties with your health since the diagnosis? I’m just so shocked and frustrated because I really felt no pain near my liver and it all happened so fast, and I have to keep asking for work off for all of this testing and probing. Im worried I’ll have to get surgery, I’m across the country from my family for school, and I seriously don’t want to be bloated like this forever 😵‍💫