u/crabran-goon69

Hi everyone, I’ll try to make this brief. About 2 months ago I started having only pain behind my left eye, extreme stabbing, burning, excruciating screaming uncontrollably pain. My eye becomes blood shot, hurts to touch, constantly tearing and drooping. After 3 ER visits I went to neurology and they confirmed clusters. I was given verapamil 40mg & sumatriptan nasal sprays. The verapamil is not enough on its own, but I have to wait until my EKG to up it. Nasal spray is ineffective and makes it worse. I noticed a week ago, my headache moved to my right eye and completely freaked me out. I’m waiting to get an emgality injection in 6 days. In the meantime, I was put on methyl prednisone steroids and it took the headache away, but as I’ve completed the pack, BOOM 4am my eye is tearing waking me up out of my sleep and pain is coming back. I feel bad constantly bothering my neuro, but knowing I have another week and can’t keep taking steroids/etc is completely terrifying. I can’t live with the fear of getting these headaches especially while I’m working in 90+ degree heat outside. It seems nothing can truly touch these headaches. I’m just wondering if anybody had luck with emgality? I’ve heard good things. Has anybody else also struggled with these waking you up like clockwork at 4am? That’s my worst symptom is knowing I won’t sleep through the night ever. This is all new to me as I’ve never even had a migraine before. I’m desperate for long term relief and solutions. Any thoughts or advice is highly appreciated. I feel like though, I’m at a roadblock and tried everything possible until an injection. This is just the hardest medical/ mental thing I’ve dealt with recently, I don’t understand why at 26 it just popped up. I was a smoker and heard that contributes but I’m at such a loss as to help myself when I have to function and work. I feel for anyone who is diagnosed, this is hell on earth for us all.

Hi everyone, I’m 26 y/o F. Sorry if I’m not making sense/ all over the place. I’ve never had cluster headaches, migraines, tension headaches, or anything like this in my life. I will say I have been on birth control since I was 15. I switched from depo pravera to pills about 3 years ago, and as of 3 days I’ve stopped it completely. I think it’s negatively affecting my body. My symptoms have included only pain on my left side directly behind my left eye. My eye has been completely blood shot and is drooping. Uncontrollable watering out of only that eye and left nostril. It feels like I have a 6 inch sword imbedded in my face behind my eye/temple. I have to wear sunglasses almost 24/7 when I’m having these “flare ups”. This past week I have had these headaches about 6 times a day everyday and nothing I mean NOTHING is stopping them on my own. I finally went to the ER after jolting awake in excruciating pain that had me screaming and crying in a way I’ve never experienced. First ER trip I just got IV Tylenol. But the next day the headaches came back at work. I’m a mail carrier and was driving and BOOM headaches so bad I’m blinded in both eyes, screaming, crying, honest to god just wanting to die in that moment. I went back to the ER that night and got a migraine cocktail, which gave me amazing relief but as I’m typing this 36 hours later I can feel the headache returning. My anxiety over expecting another one of these headaches is scaring me, I can’t go through this everyday I’m losing my mind. Only thing I can do is hot showers & cold compress on my face.

Unfortunately it’s Memorial Day weekend and I can’t get to an actual doctor. I thought I could resolve this on my own. I’m afraid it’s back to the ER tonight if it worsens, but that can’t be my solution I HATE going. Please if anyone can give me advice on doctors/ medicine what to do. I’ve seen a neurologist before for nerve pain and they treated me like fucking shit. Thank you in advance everyone.