u/dangnugget

Terrified of doing follow-up lab work

About a couple of weeks ago I was supposed to get lab work done to follow-up on something found in previous labs, but I’m avoiding it. It simply feels too hard to face what this could end up being. It feels hard to breathe when I think about it.

I have severe atopic dermatitis, which I’ve had since I was a baby. My new derm ordered me to get labs to see if I’m able to safely get on dupixent. My labs revealed that I have very high levels of LDH, or, lactate dehydrogenase (levels were in the 500s) in my blood stream. During my appointment the derm told me she isn’t super convinced something is wrong, as it could be due to the state of my dermatitis and what it is doing inside my body, but noted that this type of thing is commonly seen in people with DANCER.

I ofc did some research once I got home and all I can find about this was people talking about having DANCER and that it is a likely indicator of having it. That, or working out (I don’t work out). I also seen that someone at my levels likely means something is very wrong and it means there is severe tissue damage.

I am frozen and facing this is so hard. It doesn’t help that every time I get on YouTube, the first video recommendation is always someone with DANCER. To me, it feels like confirmation.

reddit.com
u/dangnugget — 5 days ago