u/david-byrne_Dancing

post-op chronic pain / neuropathy

hi lovely people 🌱 (first time posting)

I am mostly seeing pre/post op posts here but I thought I’d try & see if anyone here had some advice…

It’s now been 4 and a bit years since I had top surgery (& I do not regret it 🧡) am 28 yrs old

…..But.. I have unfortunately simultaneously been through the wringer pursuing answers/solutions to the chronic pain that has exacerbated over the years and totally disrupted my life since -despite total dedication to pursuing rehab and exercise in various forms/ daily meditation / all the basic health checklist items ( hydration, active rest, good sleep, utilizing compression wear / hot and cold therapy etc etc )
I have tried pushing through it and ended up with spinal flares & a cubical tunnel injury which was freaky.
(I am also autistic /have adhd which doesn’t help w my brain being hyper-aware of body at all times).
No variation of pain meds work, nor medicinal cannabis .

It feels like I have sought all the options I can think of and am now on a wait list for a Ketamine infusion ….despite not knowing too much about it…. and whether it can help reset my nerves. The pain has become an impasse to progressing with life….
& so …. wondering if anyone has or knows anyone who has experienced nerve damage post surgery for advice/ commiseration lol?

Also if anyone who’s made it this far and is pre-surgery please don’t let this scare you 🙏

I am so beyond grateful to have been able to get top surgery and resolve that crippling dysphoria (just fyi I am non binary) it just so happens my particular brain/nervous system has reacted this way that I’m still on the waitlist to embrace life in what feels like my “true body” 🌈

Hope anyone reading this is having a good day 💚

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u/david-byrne_Dancing — 5 days ago