My mom was diagnosed with bulbar ALS
Last August my mom was diagnosed with bulbar ALS after a bout with facial paralysis and some trouble with speaking. The symptoms started a month prior to the official diagnosis. By September she was heavily slurring words and having to work much harder to talk. By thanksgiving she could no longer talk. In January she started having laryngeal spasms and choking fits where she couldn’t breathe, and was in and out of the hospital every week. they gave her a medication to help and it did. In March she had to get a feeding tube placed and has since been losing a lot of weight, like 50lbs and now only weighs 100lbs at 5’5. She has progressively grown weaker during the last few months and gets tired very easily. A few weeks ago the choking fits started again even with the medication and Her ability to cough (like the doctor told her to do when this is happening) is extremely strained now. She’s still able to move around and do stuff but gets really tired after a few minutes. Sorry for the long story, I guess I’m just wondering how much longer I might get with her. I know it can be difficult to tell but if someone has a similar timeline and can give me a guess or idea I’d appreciate it.