u/edieisstaunch

▲ 14 r/cll

Husband (44M) just diagnosed and we are feeling so lost

Hi everyone. My sweet husband (44M) was just diagnosed with CLL out of nowhere. His allergist ran a few routine blood tests to check on his fish allergy and his white blood cells were very elevated at 30k. He was then referred to hematology where CLL was diagnosed. It completely blindsided both of us and we don’t even know where to go from here. His hematologist referred him to Dr. Brian Hill at the Cleveland Clinic, a CLL specialist who seems to be fantastic. He did the FISH and IGVH blood tests and unfortunately my husband’s case is unmutated and he has the 11q deletion. I have been going back and forth between crying and trying to read more about it on this Reddit and I’m just scared. From what the doctor said, this is treatable, but may require treatment sooner. Can anyone shed light on these blood test results and help provide any additional information? I have been told to avoid google because it is outdated. Any information is greatly appreciated!

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u/edieisstaunch — 4 days ago