Hormonally Mediated Vestibulodynia after stopping the pill — success stories? UK doctors for E/T cream?
Has anyone with hormonally mediated vestibulodynia (especially after coming off the pill) improved by going BACK on the pill temporarily while starting treatment?
I was pain free before coming off the pill, then developed severe vestibule pain/rawness after stopping it. I’m now back on the pill and starting Intrarosa while trying to get estrogen/testosterone compound cream.
Did anyone else experience:
tissue feeling “unsupported” or thin?
improvement once hormones stabilised again?
nerves feeling raw/surface-level even once tissue thickened?
Also, for anyone in the UK:
which doctors/clinics actually recognise hormonally mediated vestibulodynia?
who prescribed your estrogen/testosterone compound cream?
which pharmacies compound it?
From everything I’ve researched, localized estrogen + testosterone is considered the gold standard treatment for HMV, but a lot of doctors I’ve seen (including private gynos) have never even heard of the condition.
Would really appreciate success stories, timelines, or UK recommendations because this has been incredibly traumatic and isolating.