u/eulakulele

Mini Strokes or Seizures

Has anyone on here had an increase in neurological issues since starting treatment?

My mom (71 yrs) was diagnosed with PV about 6 months ago. She had started the pegasys shot, but had a seizure not long after she started it. Shr has since switched to hydroxyurea. She has been on anti'seizure meds since her pegasys shot.

About two weeks ago, she had some sort of neurological event. She was conscious and describes it like she lost control of her limbs and they were shaking like an earthquake. Her legs then lost strength and she fell down. After the event, she lost most of her strength in her legs and could barely lift them for a fee days. Her strength has mostly come back and she can walk again, but the hospital and doctors can't seem to pinpoint what happened. Her tests are not showing definite signs of a stroke or seizure. She is having some sort of cognitive fog- issues thinking of words, etc. She is taking blood thinners and has a filter to prevent clots, so stroke SHOULD be less likely.

Has anyone experienced something like this or other increased neurological issues during treatment? Any other suggestions of what she should look into? It's just frustrating that there has been little in terms of answers or help.

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u/eulakulele — 8 days ago