Has anyone been able to drive after getting their diagnosis? I’ve been seizure free for two months now, and I’m hoping it stays that way—for obvious reasons, but also because I NEED to be able to drive. I dont live in an area where public transportation is an option. It just sucks because right when I was actually studying to get my license, I started having seizures🫠
This post is more to vent than anything I think but if anyone has any kind words or suggestions I’m open. I just got hired at a thrift store. I’ve only worked two days because I got hired late in the week, and the second day (yesterday) I got sent home early due to seizure risk. But they’ve been really amazing so far. They encourage you to sit down when you need to and they seemed really concerned for my safety yesterday. Anyway, I just called my boss to get my schedule for this week and she asked about what causes my seizures (important to note my seizures are caused by functional neurological disorder, not epilepsy) and I said sometimes stress, a lot of times my migraines or due to other pain I’m in. She asked why I’m in pain and I said it’s due to certain medical conditions. Now I have to talk to her about it on Tuesday, and even though my bosses have been great so far I’m still really anxious they’re going to fire me because of how much of a hassle it is.
I wouldn’t even be mad at them, I’m mostly just mad at myself. I’m nineteen now, but I’ve had chronic pain for as long as I can remember. I was diagnosed with Amplified Muskoskeletal Pain Syndrome when I was a kid. I’ve done so much physical and occupational therapy. I try so hard to push through the pain—I tried especially hard those two days I worked. It just isn’t enough. Idk. I’m just so over it
So since my seizures started up (back in September), I feel like it’s gotten harder to think, talk, and focus. I asked my mom about it to see if it was noticeable to anyone else and she agreed. I went from having multiple seizures a day to like maybe a few a month and it’s slowly gotten easier to do those things. Unfortunately, my seizures are becoming more frequent again. Has anyone else had this experience???
I feel really stupid for being scared. I got diagnosed with a brain tumor back in December. I’ve finally got a follow up MRI (they diagnosed me with a CT) and in less than two weeks I see a Neuro-Oncologist. Back at the hospital in December they said it’s probably a meningioma and that it’s not very big. Which I guess means I’m probably fine. No one around me really knows what to do or say which I understand because when my big sister got brain cancer I didn’t know what to do or say either. I think that’s part of why I feel so ridiculous for being scared. And it’s like for months I’ve been telling myself that everything is perfectly fine and it’s not a big deal but the closer I get to seeing the doctor the more scared I get that maybe they were wrong back at the hospital and that it’s actually something else.
I don’t know. I’m just struggling with this more than I would’ve liked