u/exhausted_golden

hi everyone. i'm in a very tight spot right now.

i'm extremely ill. i have several severe chronic illnesses that affect my nervous system, heart, connective tissue, and brain. i'm almost completely bedbound as a result. i can only get up a couple times a day to use the restroom. sometimes i heat food in the microwave if im able, but i generally have to stay in bed and i eat out of a little tiny fridge that sits on my nightstand and keep dry, no prep snacks in the drawer.

i live completely alone and have no support system, and i'm now facing a housing crisis. i cannot work and i don't have a way to pay rent. even if i do figure out how to keep paying rent that only extends my timeline by a few weeks as my lease is up soon. i'm terrified i will end up homeless. because of the sheer severity of my health condition, homelessness, and even shelter placement, would be quickly and genuinely life-threatening. i am barely getting by at home where i have a safe, private room, a roof over my head, food and water, my bed, and a rather specialized setup tailored to my needs that lets me stay fed and relatively clean.

i've been trying for half a year to get help through the systems that are supposed to be there in these situations, but they have failed me repeatedly. i am trying to do what i can but i am extremely sick and exhausted. i literally do not have the physical capacity right now - navigating these systems, even with very careful pacing, regularly causes me to flare and crash badly.

i have reached out to my hospital, social work, CIL, ADRC, 211, rapid rehousing programs, PAF, disease specific grants and charities, etc. i have been failed in some capacity by all of these programs except for one charity and the ADRC (but they are moving extremely slowly, slower than my timeline). i am working on SSI for the income component (i have 0 income rn, have fully exhausted my savings, and cannot work), but i don't know what to do about housing. i am hoping that by some miracle the ADRC and rapid rehousing will be able to come through for me given the sheer extent of my medical frailty and the risks being homeless carries for me, but i can't bank on that given how things are going.

i am completely and utterly exhausted. i am fighting for my life and the sheer effort of it is making my baseline decline further each week. months of my best efforts are still just not enough, and i am forced to manage and fight everyone at every turn. i am my own advocate, lawyer, doctor, case manager, administrative assistant, and accountant all in one. this is a massive amount of work for *anyone,* much less someone as ill as me.

i don't know what to do. if i end up homeless i am terrified of what will happen to me. i am extremely vulnerable on so many levels.

i dont have a car and i cannot get one. even if i could, i cannot drive because of my symptoms.

if anyone has any ideas on what to do, including ways i could possibly get some income to cover the rest of lease, what to do when my lease is up, or just.. anything i can do at this point, i'd be grateful.

thanks for reading<3

edit: i live in florida, USA.