u/geminxi

nf1

im 17f, and most of my neurofibromas are scattered across my chest+back where i can hide them, but some are on my arms and legs where they can also be hidden

i have two smallish neurofibromas on my jaw that are very noticeable, and hair even grows on them that i occasionally shave. There are also lots of neurofibromas and cafe au lait spots on my neck that are basically impossible to hide.

recently i noticed a small bump on my chin that i am sure is a neurofibroma, and im so scared because my face is the only body part where i barely have any tumours (aside from the ones on my jaw) and where i actually feel pretty.

i dont know if this is a selfish or insensitive thing to say but i am terrified to have more tumours form on my face and i dont know what to do.

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u/geminxi — 3 days ago