new to this…
heyyyy everyone. 😅🤪i’m a 28 year old woman, and i was recently diagnosed with epilepsy after 2 long years of seizure episodes and blackouts. it’s a long story why it took so long to get a diagnosis, but that’s besides the point. i’m writing because since finding out, i have been very sad. unwell:( physically, mentally, emotionally.
i’m soooo paranoid now that every little thing is going to cause me to have a seizure. especially because i don’t experience any auras or vibes before the seizure happens. i have not been able
to identify any triggers or anything; besides being hungover when i have an episode, or having one in my sleep.
i’ve had 2 EEGs, one a short one, one a week long one. the shorter one didn’t result in anything. lights or heavy breathing did not trigger a seizure. it didn’t for the week-long one anyone either.
again, this has made me SOOOO uncomfortable and paranoid everytime i feel something weird or bad or anxiety inducing. i left the hospital on Friday, august 14th. and i feel like my life has changed for the worse. since the hospital visit, due to those seizures i had while checked in the hospital, my memory has gotten worse. not only that, but i struggle to find my words as well, and i have been soooo exhausted.
i just wonder if anyone else lacks auras! or can and have been smoking marijuana with no problem. i’ve smoked often, but after the diagnosis i’m scared it’s a trigger. i’m not sure what to do. do you guys think i should cut down on/stop smoking?
is it normal to not be affected by lights and heavy breathing during EEGs? despite being epileptic?
any advice, words of wisdom and/or affirmation would be greatly appreciated. :))))