u/haileerose16

I feel like I just need to rant a little, I was in PT for about 6 weeks and then had a nerve block injection in my chest for a separate issue that resulted in my lung being collapsed. I had to take off PT and still haven’t been able to return yet, but the last 3 days I’m so off balance and my legs have been giving out on me to the point I almost fell down at work today and woke up to them being completely numb and I had to pick them up to turn myself in bed. My back and hips hurt so bad I just want to cry. I feel like this is the only place I can come on here and not feel like a drama queen. I’m tired of being broken (literally) and even more tired of my boss making me feel like a bad guy because I have medical issues. My ortho is getting me in for an emergency visit tomorrow due to the falling episodes and quite literally having to look at my feet to walk down stairs or on uneven ground and my boss just was so upset about it even though I’m doing it on my lunch break and made it a point that the last time I got this bad I was bed bound for a week while on heavy muscle relaxers and steroids. Someone please give me something positive because I’m just feeling extremely defeated with it all on top of my other medical issues and it seems to be never ending, I just want to feel normalish again ☹️

I have been trying to sleep with a pillow between my knees to alleviate some of the pain I have in the mornings, but I run into the issue of it just moving around and not doing much to benefit me. I’ve contemplated getting a maternity pillow but wanted to see if yall had any suggestions. TIA! :)

Okay guys I am a pretty avid player, but I CANNOT for the life of me find ANY grim or zero point sprites out in the wild lol. I’ve been all around the map, tried the different little Easter eggs and still nada. I have the OG zero that I got from a guy on threads and I’m really wanting to find one rather than just be handed them if I can. So with that in mind, WHERE?!?!? Thanks-a very frustrated girlie that just wants to feel somewhat accomplished in the game lol

Well I went in today for my CPB, my arrival time was 12:30 and it was well after 2:30 when we finally began. My doctor sent it over with sedation, nothing crazy just enough to keep me comfortable and they did NOT give me any sedation. They started on the right side, inserted the first needle with the anesthesia to numb it up and then the rest of the meds, was uncomfortable but not too terrible. Started on the second needle and it was going fine until they moved onto the steroid, when I suddenly had a very sharp pain down into my side and into my chest and felt like I couldn’t breathe. After a couple minutes I finally said something because it was becoming unbearable. They went to the left side, finished up and I was in so much pain that I could barely even think straight. They move me back onto my bed, tell me I can only lay on my back and put me on oxygen. The nurse then tells me I have air in the pleural cavity of my right lung and I’m being kept for another two hours to be monitored and then they would complete an x-ray. X-ray confirmed I had a small pneumothorax and they said I’d be fine to leave but to monitor my symptoms. Outside of that insane adventure and the ongoing pain from the lung collapsing, I’m feeling pretty good. I had very consistent pain in my sternum before which I don’t have now, the crazy heartbeats don’t seem to be there, and was able to eat a normal amount without any pain. Sharing this not to scare anyone waiting for the block but just as a precaution and also as a sign to advocate for yourself! I obviously can’t say for sure, but part of me thinks had I been sedated maybe that wouldn’t have unraveled in that fashion, as if maybe somehow me being more relaxed would have prevented it.

Okay friends, sorry I’m a silly goose and can’t get my edit on my last post to save lol. But after chatting with some of y’all, I decided to reach out to my surgeon’s office and have my block scheduled for 6/18. They are doing it under sedation because I’m a weenie hut junior and the thought of the appointment makes me squirm🤧😂 but that in mind, what should I expect? If it is MALS, will I wake up and feel brand new? Wanting to set my expectations low so I’m not disappointed if it doesn’t work for me but also want to know what I’m in for. Give me all the details, good or bad!

Hi all, I (27 f) am hoping to get some insight from fellow MALS goers. So for informational purposes, I haven’t been officially diagnosed with MALS. I spent all of 2025 with bad pain, lost tons of weight and got put on a feeding tube. Well back in September after trying and checking everything, my GI doctor decided to run another CT scan to check for MALS, which didn’t have findings connecting it but did have findings for SMAS. Saw vascular surgeon, looked at my CT and he wasn’t convinced of SMAS and said it was possible of MALS and even possibly Nutcracker Syndrome. My question to yall is, have you experienced vision problems and what I can best describe as an electric shock feeling? I get it mostly when laying down but it gets so bad it will wake me up in my sleep. I have other possible causes that it could be from but I just have this feeling it’s not those other issues. Contemplating getting the celiac block because it’s been much worse lately and I opted to not do it back in February which I now regret. Sorry for the spiel, but hoping someone might have something to give me here lol.

Has anyone here with neck problems ever experienced a vibration/shock feeling in your body? I don’t know how else to explain it outside of maybe tremors, but it reminds of how it sounds standing next to an electric fence where you can hear the buzzing and it typically only happens when I’m laying down about to fall asleep, but over the last few days it’s been pretty bad and I’m noticing it when I’m awake and my vision sometimes feels shaky as well. I’ve been dealing with it for about 6 months now and never could figure out what the cause was and now wondering if it’s something like Lhermitte’s Sign caused by my moderate neck issues.

I think I might have played my last 18 holes today and it’s honestly a very sad feeling. I go in to see my ortho on Tuesday, who I haven’t seen in 3 years and pretty sure he’s not going to have good news for me. From what I gathered, golfing isn’t great on your back, especially if you have problems. But golfing is about the only “physical” activity I can do due to heart stuff that limits my cardio ability, I already gave up the gym 6 years ago because of it and feel like I’m about to lose the only hobby I have left☹️ anyone here golf before your diagnosis and/or progression of your back problems and still able to golf? Really would like to hear some positive experiences but also being realistic with my expectations here.

Hello all, I’m not sure if I’m in the right thread for this but hoping to get some insight from fellow back issue goers. I (27 y/o f) was diagnosed with bilateral pars defect in my L5 back in 2022, doctor said I’d most likely need surgery but wanted to hold off because I was only 23 at that point. Fast forward to 2023, I fell while swing dancing and ended up with some nerve compression but still held off on surgery and just did PT and some medications to help with the inflammation. Well I recently had an MRI done on my C spine after having some nerve pain and numbness in my arms and hands, which came to show some degenerative changes in my C4-C7. As of late, I’ve had a lot of issues with my legs tingling after sitting for a minute and then now to the point I can’t sit with my legs crossed or they go numb, but about two weeks ago I decided to participate in a race with some friends, about 20 feet into the race I lost all feeling in my legs and collapsed and attempted to do a wall sit the other day and same thing happened. I’m seeing my ortho on 5/5, but has anyone experienced this? Just wondering if that’s a sign of my back worsening especially where I now have some problems in my neck, I haven’t had imaging on my back since 2023, but some x-rays done my stomach/pelvic area have confirmed the chronic pars defect is still in fact there. These issues run in my family, me and my dad have similar issues in the same areas but his are worse. TIA for any info provided!